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hi .
There is a MSA List. You can sign up by going to
http://www.egroups.com/group/shydrager
autonomic and balance problems are real common there. Hope this helps.

nancy

Ray Strand wrote:
>
> this sounds like my situation also
> i'm labelled PD+ by my neurologist...because i don't fit any where else
> scary, progression may not be slow, future indeterminate.
> in 1 to 5 years the clinical diagnosis is supposed to be clarified
>
> asymmetric symptoms
> action tremor
> gait problems
> balance problem
> autonomic problems
> normal MRI
> taking Sinemet (helps)
>
> maybe we need our own name like--
>
> PD?
>
> :-)
>
> "Edith S. Love" wrote:
>
> > Hi, Nancy,
> > For now I'm in the category of Parkinson Plus Disease/Syndrome. Atypical PD
>
> snip
>
> ..........................................................................
>                     Ray Strand
> ...on the edge of the prairie abyss ......................
> ..........................................................................
>             48/47 dx/40 ?onset
> ..........................................................................
> The ultimate measure of a man
>  is not where he stands in moments of comfort and convenience,
>  but where he stands in times of challenge and controversy
>                                 ---Rev. Dr. Martin Luther King Jr..