Dear Mrs. Tomoko, How good it was to hear from you, and that you are
getting energized to do something about PD! Thank you for writing to the
newspaper. I am sending you some information about resources which might be
useful to you or other PWPs in Japan. Note that there are 2 NPF Centers of
Excellence there. Keep up the good work!
#########
Friends-- As we often get inquiries about PD resources in other countries
than the USA, I was interested to note that the National Parkinson
Foundation. supports
affiliated Centers of Excellence in 9 other countries:
China, Argentina, The Netherlands, Japan (2), England, France,
Israel (2),
Canada (2), and Spain.
Persons interested in knowing more about these centers should call the NPF
at 1-800-327-4545 OR write them at 1501 N.W. 9th Ave, Bob Hope Road,
Miami,Florida, 33136-1494
#########
Date: Thu, 29 Apr 1999 17:40:11 -0500
From: Camilla Flintermann <[log in to unmask]>
Subject: NPF publications for "overseas"
Sender: "Caregivers Are Really Essential (CARE)" <[log in to unmask]>
Dear Friends---especially those living outside the continental USA-----
I was concerned that often our "overseas" (that is non-USA) members may
not have access so easily to PD publications and resources for information.
Thus, I inquired of the National PD Foundation (Miami, Florida) whether
their excellent pubs might be available to folks outside the USA and what
the costs would be.
Today I received the following response:
>Hello:
>Let's try it on the honor system.
>We will send the literature along with an invoice for the cost of
>shipping the package. The information as always is free.
>Please have these requests marked somewhere (Attention: M.
Alicea/Care)
I would encourage listmembers to take advantage of this excellent resource.
I expect that pubs can be ordered by e-mail, so that not even a
long-distance phone call is required. The e-mail address is :
NPF Mailbox: <[log in to unmask]>
Don't forget to say "Attention: M. Alicea/Care"
For your information, a few of the topics covered by their pubs are:
"Patient Perspectives on Parkinsons" by Sid & Donna Dorros, "Practical
Pointers for Parkinsonians", "Nutrition Matters" (abridged from Kathrynne
Holden's book), "Fitness Counts"(exercises), "The Parkinson Handbook--a
Guide for Patients & Families", "Speaking Out"-( on speech & swallowing ),
"Medications"
If you are interested in a particular subject, include that in your e-mail
message and ask if they have something about it.
#########
Mrs. Tomoko wrote in part:
>Hello everyone,
>
>I have been a quiet subscriber and have been amazed by the way you
>act in a very positive way to cope with each one of the problems with
>PD.Since I joined this ML,I have been reflecting my very passive attitude
>toward my PD for the last
>12 years with PD after I was diagnosed at the of 26.
>
> So I wrote to a letter to the biggest newspaper in Japan about the
>hearing
>of Michael J Fox.
SNIPPED
>I have been making a homepage on Pd in Japanese ,wishing I could do
>something about raising the awareness on PD in Japan.I also
>have been looking for ways to share and exchange the infor on PD in Japan
>and the infor you put on this ML
>in English from all over the world.
>
>I am currently living in UK.
SNIPPED
>Getting involved in something positive on PD really energyes me .
>I want to get out of my shell and do what I can do with my best ablities.
>
>
>Tomoko Abe(Mrs)
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
<[log in to unmask]>
on PDWebring at
http://members.tripod.lycos.nl/genugten/flinterm.htm
"Ask me about the CARE list for
Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
