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I'm so sorry that I missed the original conversations
re "Voice Improvement"...My wife, Carolyn, who is 59,
and who has Parkinsons for 23 years now, desperately
needs all the help and advice we can get concerning
this subject. What is this procedure your referring to
[ foam and gortex ]and how does Kaiser, our HMO also,
fit into the picture? We would really appreciate
either Barb or Elizabeth elaborating on this topic.
Thank you, Listserv
--- Barb_MSN <[log in to unmask]> wrote:
> Liz... )Mopping up tears)
>
> I'm SOOO happy for you! (Jumping outta chair and
> dancing wildly
> 'round living room  with joy for ya))  In fact,
> you've inspired me
> to call UCLA's Dr. Burke  once again to see if HE'S
> updated his
> procedure by adding the foam and the gortex.
>
> IF he hasn't updated the procedure. THEN, by golly,
> I'll start
> working on Kaiser to send me into your part of the
> world and go
> for it h that way.
>
> YOU GO, GIRL!  I salute you...
>
> Barb Mallut
> [log in to unmask]
>
> -----Original Message-----
> From: Elizabeth Southwood <[log in to unmask]>
> To: [log in to unmask]
> <[log in to unmask]>
> Date: Wednesday, September 27, 2000 2:19 PM
> Subject: Voice Improvement
>
>
> >Barb shared her experiences with working with her
> voice with us,
> a great
> >inspiration to me.  Here's what's happened to me so
> far, with my
> voice.  I
> >was referred by my ENT doctor to another ENT
> doctor.  This was
> about a year
> >ago.  He said that because of what he found when he
> examined me
> that he
> >thought he could improve my problem, a Parkinsonian
> weak,
> whispery voice, and
> >also improve my swallowing and breathing.  In the
> meantime I got
> sick, then
> >tripped and fractured my hip.  By the time I saw
> him again, about
> a month
> >ago, the operations used different and improved
> materials.
> >
> >Yesterday I was given a general anesthetic and my
> vocal chords
> were injected
> >with gel-foam which will be absorbed but meanwhile
> show me if the
> procedure
> >is worth doing on a more permanent basis.  My
> husband is
> delighted that I
> >have a voice, an honest to goodness voice again and
> feels that
> 'the permanent
> >procedure' is definitely a go.  The final material
> lasts 2+
> years, I think
> >the doctor said.
> >
> >Thanks heavens for this listserve!!  This is only
> one of the
> things I have
> >read that has improved my quality of life with this
> dumb
> disease -- another
> >is the two people (one was Rita) who told us about
> Ecco shoes at
> Nordstroms
> >-- they feel great and are cute or good looking
> too.
> >
> >I sang last night and recited some poetry and read
> some
> Shakespeare (the
> >greatest use of English) and read the cooking and
> garden sections
> of today's
> >paper.  Even an improvement that's not a cure, I
> realized, can
> make a
> >difference.
> >
> >Thank you, Barb, and listserv...Liz S.


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