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Yes, Marjorie is on her soapbox again!! I have deliberately not posted for several days trying to let my temper abate. I really don't like to hurt peoples feelings. However, IMOHO, its time to access where we are ,and above all , exactly what we are. There are, by my count on PIENO, 28 Parkinson's Disease Organizations in the World today, probably be more of them tomorrow. I feel we should leave the GROUP advocacy to these groups. Each one of these groups have paid staff and are registered as Non-Profit Organizations, each one is specialized for the people they serve, which to me makes having ONE big organization an impossibility. Cooperation YES, ONE organization NO!! We are, above all, a SUPPORT GROUP, we are not controlled by any of the above mentioned 28 World PD Organizations, nor should we be. We are an independent group of PWP's, without which ,these 28 World PD Organizations would have serve no purpose. We are not an Advocacy Group, and I certainly hope we have sense enough not to try to become one. We don't want to register, lose our status with the Un. of Toronto as being PWP's and entitled to free access through Barb Patterson's generosity. We don't want to hire a paid staff. Volunteerism by ill persons just won't work, if any of us have that much energy then we'd still be working full time, not volunteering. Indeed, we may be "small potatoes" compared to other diseases, but its our disease and we are stuck with it for a lifetime ,or at least till they find a cure. We may email and we may FAX and phone "till we are blue in the face", but we shall continue to do so, because that's just the way we are. We will NEVER give up and we will be INVISIBLE NO MORE!!! Thanks to Barb P. for the slogan. To paraphrase a now deceased Senator from Florida, Claude Pepper, who said that very two years the people of the United State grab the steering wheel and nudge us into the direction we should be going. Well, it's our turn to nudge, not just for PD but for all the other diseases and birth defects which might, just might, stand a chance through Stem Cell Research. Now, lets all GO GET 'EM!!! Email your Senators and Reps. and find out how they feel about Stem Cell Research!!! Then make certain you are registered in your State to vote, or have an absentee ballot, if you don't vote, we won't listen to your complaints!!! just me, Marjorie 67/58/55