 |
 |
When I was diagnosed in May one of the first things I did was subscribe to this list. The purpose was to educate myself on the disease and learn how others cope with it. The list has more than met my highest expectations. One constant suggestion to new 'parkies' was to see a Movement Disorder Specialist. Well I took your advise and last week I had an appointment with a Dr. Timothy Counihan, in Rochester, NY USA. I was very pleased with the results, not because he found any great error in what my neuro was already telling, but for the most part because he confirmed what my neuro was telling me: I have a mild to moderate case of PD. He really can't predict what the future holds for me; the disease varies too much between individuals. His diagnostic procedure pretty much matched my neuro's. On the other hand my neuro wasn't overjoyed with my decision to quit Sinemet until I really need it, but Dr. Counihan supported my decision. He will suggest that my neuro add an agonist(sp?). One interesting thing he said that his observation has been that those whose main symptom is tremors, the disease seems to be less aggressive. I do have many symptoms, but the hardest to deal with are tremors and lack of sleep. I would be interested in hearing what listmembers have to say about his comment. I can now go forward with full confidence that my neuro is doing well by me. But just in case I plan on a yearly visit the good doctor in Rochester;) Once again thanks to those on the list who make such an important contribution to those of us in need of information and support. Jim Dolan 58/85/55 PS: Now please stop shooting at each other, or there won't be anyone left to help those in need.