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hi jim, bernie in ny i have also stopped sinemet, and feel much better, my pd is mild although diagnosed 15 yrs ago, tremors and lack of sleep are primary. i have also disturbed my neuro by telling him i will not take anything but eldepryl and vit.c & e, until i am totally disabled, for the side effects IN MY CASE were killing me bernie k >From: Jim Dolan <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: MDS Visit >Date: Mon, 2 Oct 2000 13:51:11 -0400 > >When I was diagnosed in May one of the first things I did was subscribe to >this list. The purpose was to educate myself on the disease and learn how >others cope with it. > >The list has more than met my highest expectations. One constant suggestion >to new 'parkies' was to see a Movement Disorder Specialist. Well I took >your advise and last week I had an appointment with a Dr. Timothy Counihan, >in Rochester, NY USA. > >I was very pleased with the results, not because he found any great error >in what my neuro was already telling, but for the most part because he >confirmed what my neuro was telling me: I have a mild to moderate case of >PD. He really can't predict what the future holds for me; the disease >varies too much between individuals. His diagnostic procedure pretty much >matched my neuro's. > >On the other hand my neuro wasn't overjoyed with my decision to quit >Sinemet until I really need it, but Dr. Counihan supported my decision. He >will suggest that my neuro add an agonist(sp?). > >One interesting thing he said that his observation has been that those >whose main symptom is tremors, the disease seems to be less aggressive. I >do have many symptoms, but the hardest to deal with are tremors and lack of >sleep. I would be interested in hearing what listmembers have to say about >his comment. > >I can now go forward with full confidence that my neuro is doing well by >me. But just in case I plan on a yearly visit the good doctor in >Rochester;) > >Once again thanks to those on the list who make such an important >contribution to those of us in need of information and support. > >Jim Dolan >58/85/55 > >PS: Now please stop shooting at each other, or there won't be anyone left >to help those in need. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com.