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Another reason to point out how unique we all are in our response to medication. In my case, all the dopamine agonists I've tried have had horrendous side-effects...Carole --- bernardo klainberg <[log in to unmask]> wrote: > hi jim, bernie in ny > > i have also stopped sinemet, and feel much better, my pd > is mild although > diagnosed 15 yrs ago, tremors and lack of sleep are > primary. > i have also disturbed my neuro by telling him i will not > take anything but eldepryl and vit.c & e, until i am > totally > disabled, for the side effects IN MY CASE were killing me > bernie k > > >From: Jim Dolan <[log in to unmask]> > >Reply-To: Parkinson's Information Exchange Network > ><[log in to unmask]> > >To: [log in to unmask] > >Subject: MDS Visit > >Date: Mon, 2 Oct 2000 13:51:11 -0400 > > > >When I was diagnosed in May one of the first things I > did was subscribe to > >this list. The purpose was to educate myself on the > disease and learn how > >others cope with it. > > > >The list has more than met my highest expectations. One > constant suggestion > >to new 'parkies' was to see a Movement Disorder > Specialist. Well I took > >your advise and last week I had an appointment with a > Dr. Timothy Counihan, > >in Rochester, NY USA. > > > >I was very pleased with the results, not because he > found any great error > >in what my neuro was already telling, but for the most > part because he > >confirmed what my neuro was telling me: I have a mild to > moderate case of > >PD. He really can't predict what the future holds for > me; the disease > >varies too much between individuals. His diagnostic > procedure pretty much > >matched my neuro's. > > > >On the other hand my neuro wasn't overjoyed with my > decision to quit > >Sinemet until I really need it, but Dr. Counihan > supported my decision. He > >will suggest that my neuro add an agonist(sp?). > > > >One interesting thing he said that his observation has > been that those > >whose main symptom is tremors, the disease seems to be > less aggressive. I > >do have many symptoms, but the hardest to deal with are > tremors and lack of > >sleep. I would be interested in hearing what listmembers > have to say about > >his comment. > > > >I can now go forward with full confidence that my neuro > is doing well by > >me. But just in case I plan on a yearly visit the good > doctor in > >Rochester;) > > > >Once again thanks to those on the list who make such an > important > >contribution to those of us in need of information and > support. > > > >Jim Dolan > >58/85/55 > > > >PS: Now please stop shooting at each other, or there > won't be anyone left > >to help those in need. > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com. > > Share information about yourself, create your own public > profile at > http://profiles.msn.com. __________________________________________________ Do You Yahoo!? Yahoo! Photos - 35mm Quality Prints, Now Get 15 Free! http://photos.yahoo.com/