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I'd personally rather take a medication that has a 40 year track record and is still considered the "gold standard" than one that is a couple of years old and unproven. Don't buy into the hype on the evils of sinemet. The new agonists have serious side effects for some. Use what works for you and gets you through the day. Greg 47/35/35 ----- Original Message ----- From: "Carole Hercun" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, October 03, 2000 7:43 AM Subject: Re: MDS Visit > Another reason to point out how unique we all are in our > response to medication. In my case, all the dopamine > agonists I've tried have had horrendous > side-effects...Carole > > --- bernardo klainberg <[log in to unmask]> wrote: > > hi jim, bernie in ny > > > > i have also stopped sinemet, and feel much better, my pd > > is mild although > > diagnosed 15 yrs ago, tremors and lack of sleep are > > primary. > > i have also disturbed my neuro by telling him i will not > > take anything but eldepryl and vit.c & e, until i am > > totally > > disabled, for the side effects IN MY CASE were killing me > > bernie k > > > > >From: Jim Dolan <[log in to unmask]> > > >Reply-To: Parkinson's Information Exchange Network > > ><[log in to unmask]> > > >To: [log in to unmask] > > >Subject: MDS Visit > > >Date: Mon, 2 Oct 2000 13:51:11 -0400 > > > > > >When I was diagnosed in May one of the first things I > > did was subscribe to > > >this list. The purpose was to educate myself on the > > disease and learn how > > >others cope with it. > > > > > >The list has more than met my highest expectations. One > > constant suggestion > > >to new 'parkies' was to see a Movement Disorder > > Specialist. Well I took > > >your advise and last week I had an appointment with a > > Dr. Timothy Counihan, > > >in Rochester, NY USA. > > > > > >I was very pleased with the results, not because he > > found any great error > > >in what my neuro was already telling, but for the most > > part because he > > >confirmed what my neuro was telling me: I have a mild to > > moderate case of > > >PD. He really can't predict what the future holds for > > me; the disease > > >varies too much between individuals. His diagnostic > > procedure pretty much > > >matched my neuro's. > > > > > >On the other hand my neuro wasn't overjoyed with my > > decision to quit > > >Sinemet until I really need it, but Dr. Counihan > > supported my decision. He > > >will suggest that my neuro add an agonist(sp?). > > > > > >One interesting thing he said that his observation has > > been that those > > >whose main symptom is tremors, the disease seems to be > > less aggressive. I > > >do have many symptoms, but the hardest to deal with are > > tremors and lack of > > >sleep. I would be interested in hearing what listmembers > > have to say about > > >his comment. > > > > > >I can now go forward with full confidence that my neuro > > is doing well by > > >me. But just in case I plan on a yearly visit the good > > doctor in > > >Rochester;) > > > > > >Once again thanks to those on the list who make such an > > important > > >contribution to those of us in need of information and > > support. > > > > > >Jim Dolan > > >58/85/55 > > > > > >PS: Now please stop shooting at each other, or there > > won't be anyone left > > >to help those in need. > > > > > _________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at > > http://www.hotmail.com. > > > > Share information about yourself, create your own public > > profile at > > http://profiles.msn.com. > > > __________________________________________________ > Do You Yahoo!? > Yahoo! Photos - 35mm Quality Prints, Now Get 15 Free! > http://photos.yahoo.com/ >