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morning! i have met jane in person and well no matter...I know I don't want to have her life and she doesn't want mine:) However, one thing in common all chronic and terminal illnesses are crap. Most all end up dependent if there isn't a cure when the patient gets bed bound. For example, I remember I used to hate my tremors. Boy ! to this day my whole body tremors. Now I wish that is all that was wrong. But at that time to me as a patient that was important- the tremors. To each individual what ever they deem important is just that. Initially being diagnosed with msa/ sds or snd primarily, then young onset pd and now the diagnosis is being discussed. I appreciated very much that the docs are adult enough to discuss their opinions concerning my diagnosis. That shows true professionalism. That shows to me that they truly took and believe their oath. I understand many think the would u rather die slowly or on the spot. Seeing patients who had strokes and treating their language and speech problems, I took that as a real challenge. see below please:) Greg Sterling wrote: > > Jane, > PD is not like suffering a stroke where one minute you're "normal" and the next you're completely disabled. Some patients recover depending on their age and severity,ect. I understand the comparison between pd and stroke isn't the true point. However,PD is an insidious progression of symptoms which eventually lead to total disability. Certainly there are worse ailments, but don't understate PD's seriousness. Every PWP is different. Also, age at diagnosis is a major factor in determining how PD affects your life. You may be one of the lucky ones. Progression is so varied that it's difficult to predict where you'll be a year from now. ur right! when i was first diagnosed I was bedbound and totally dependant within about 1 1/2 years, now I use walker, ect for 1 hour a day! Heck I am happy I can move sometimes and then other times I can't stop. Does not matter what disease a person seems to have. If a person interchanged the acronym P.D. for whatever they have been diagnosed with the above sentences concerning progression, affect on ur life, age, many external variables are true. Maybe the patient just gets use to the symptoms or accepts the symptoms as they progress. Not mean give up I said accept:) nancy > > Greg > 47/35/35 > ----- Original Message ----- > From: "Jane Ross" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, October 11, 2000 6:54 PM > Subject: If I had known then what I know now! > > > A couple of years ago I was involved with a group of Parkinson patients who > > had been chosen to help patients with peer counseling. We were from all over > > the State and at different stages of the disease. > > > > There were about eight with Parkinson's and the same number of caregivers. > > Most of the Parkinson people had one theme in common, I heard at least four > > of them introduce themselves as having Parkinson's and felt that if they had > > known then what they know now they wouldn't have been so afraid of the > > disease. > > > > This subject has stuck with me because I too feel it hasn't been as bad as I > > had anticipated. > > > > I do not mean to deminish any one elses pain with this disease but to > > express another view point for discussion. > >