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true, support gore bk >From: Greg Sterling <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: State of Maine cuts my home-care services from 13 hrs to 5 > hrs; Appeal called in >Date: Tue, 24 Oct 2000 08:32:18 -0400 > >Ivan, >Hope you have better days. With the electon only 2 weeks from today, and >so close, it's important to get out and vote. Nader and the Green Party >have some good ideas, but unfortunately have no chance of winning. A vote >for Nader will only hurt Gore and elect Bush. Sad, but true. >Greg >48/35/35 >----- Original Message ----- >From: "Ivan M Suzman" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Tuesday, October 24, 2000 5:15 AM >Subject: State of Maine cuts my home-care services from 13 hrs to 5 hrs; >Appeal called in > > > > ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) > > Ivan Suzman 50/39/36 [log in to unmask] :-) > > Portland, Maine land of lighthouses 37 deg. F :-) > > ******************************************************************** > > > > Dear PIEN friends, > > > > DISASTER!! I am fighting a dangerous and vicious decision that > > endangers my safety at home. Please help me if you can. > > > > The Maine Governor , Angus King, can be phoned at 207-287-3531. > > I am the AUTHOR of his annual PD Awareness Proclamations. > > Please make him aware that my health and safety are jeopardized . > > by a decision made yesterday, and scheduled to go into effect on > > November 1, 2000. > > > > My case is stuck in the Bureau of Elder and Adult Services, BEAS, > > and serviced by a company called Alpha One, Inc. . AO is very > > closely linked to the George Bush campaign ,and is very biased > > towards the Republicna party. Although I manage four personal > > care attendants in a rotation around the clock, and do it perfectly, > > I am considered an enemy becaused I am a VOCAL patient. > > > > THE NURSE ASSESSORS (Betsy Balzano of Alpha One, > > and Molly Baldwin of the BEAS), put me through a 5-hour and 20 > > minute non-stop interrogation yesterday, and used information >selectively > > . > > Their decision is obviously pre=-planned, and in flagrant conflict with > > reality. > > > > THEY CUT 8 HOURS OUT OF MY DAILY CARE PLAN . Balzano and Baldwin > > are tyring to eliminate 8 of my 13 hrs of home-care allowed during > > each 24- hour day, leaving me wtih only 5 hours of home-care per day!! > > > > . They added that home-care costs will not be covered, that for the > > first time, > > I will be forced to pay "co-payments". There is no time allotted for > > "Off-periods," > > no time for stand-by assistance when the commode (toileting) > > is needed, and I am being penalized for wanting to drive. They > > refuse to assist my independence, do NOT approve of my going to > > see sick friends in the hospital, refuse to allow as evidence the >October > > 16, 2000 > > neurologist's letter, which they have ignored. They allot times for > > everything > > from putting on a sock to eating supper, and have NO interest in >allowing > > me toi eat at a normal PD pace, which of course is SLOWER. > > > > They want my caregivers to vacuum while I am eating, to not sit with > > me and see what help I need. They are now supposed, to run water and > > do dishes while I am eating 4 feet away. They do not allow me more >that > > one change of > > clothes per 24-hour period, despite the sweating I go through..Theu > > are trying to make my helpers feel like rats on a treadmill.. > > > > BUT DO NOT DESPAIR! I have called in to the Bureau to request an > > appeal. > > . > > I have asked for help from the disability rights center and > > Attorney Helen Bailey has responded. She will look at the > > nuses; care-cutitng decision, to see if a response can beconstructyed. > > > > I will FIGHT FIGHT FIGHT and pray my was through this. > > Molly Baldwin will lose her job--she wants me to take the 5 hours of my > > day care, transfer it to night care, and then leave me with no hours > > at all for day care. She wants me to find a way to say goodbye to > > Natalie, Julie, Tracy .... > > THIS IS WHAT HAPPENS TO POOR PEOPLE on the PIEN list > > who try to get home care and who refuse to leave home. > > > > Now maybe some of can understand why RAlph Nader > > and the Green party are gaining ground. Nader and running - mate > > Winona ;laDUke , if you take the time to check everything out, >recognize > > that peo0ple like me are silenced and disenfranchised. > > > > Ivan Suzman > > Young Onset Parkinson's patient-advocate > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com.