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some of you may recall that i used to quote my friend anne fairly often.
she developed foot and hand exercises
was redioagnosed as having dopoa responsive dystonia
and of late experienced a severe exposure to pesticides
with seriously debilitating results.
well, the latest is as follows:
the pesticides have set up  an auto immune response
originally triggered by her exposure to pesticides in 1994
but severely irritated by the recent exposure.
This has caused a rapidly spreading neuropathy
which is destroying the axons
this deterioration is quite noticeable
 and if and when it reaches the diaphragm,
she will be confined to ICU and a respirator
 to keep her lungs functioning.
yes, steroids might do the trick 0-
but anne cant take steroids.
there is a treatment - IgG - in a 5 day infusion.
 The cost of this treatment is $12000
and it needs to be done soon.
Every day counts.
it is a recognized treatment [passed by the fda]
but beaurocratic delays by the hmo
have already caused a week's delay,
which shows no sign of being solved
how does my friend anne
persuade the insurance of the urgency  -
this is a life thbreate4ning situation
and get them to authorize the tereatment she so desperately needs?

hilary