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Guidelines for centers performing DBS:

1.    The neurologist i.e. movement disorder specialist and its team should
be able to select the right patients.  If not strictly selected you run the
risk of complications, poor response and adverse events after surgery.

2.    The neurosurgeon should be able to place the electrodes in the
subthalamic nucleus (STN) without exception.

3.    There should be no serious complication at surgery.  If properly
selected patients are operated on, the risk of acute complications is very
low.  Example:  don't take aspirine at least 10 days prior to surgery.
(Don't forget to tell your doctor, when  you take this medication!)

4.    The anti-Parkinson meds should be significantly reduced. If you still
require the same amount of anti-Parkinson meds. after surgery, the procedure
is a failure!!! You were either not a good candidate or the electrodes were
not placed correctly or the stim. settings are way out.

5.    Your neurologist i.e. movement disorder specialist should be able to
adjust stim. parameters and it should always be the same person adjusting
the parameters.  No residents, no nurses!!

The centers should be required to give their complication rates and succes
rates, but unfortunately this seems to be a Utopia.
The neurologist or neurosurgeon should take the time to explain the
procedure, what to expect and the number of visits after surgery for proper
adjustments.

Good luck everyone out there.

Chris van der Linden, M.D.
Movement Disorder Center
St. Lucas Hospital Ghent
Ghent
BELGIUM