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what a dreadful experience. i dont think i have ever had quite as bad a one myself, but there have been a couple of doozies that went on for hours. But... i always load up on protein - anything i have in the house, from cheese to steak to plain cold milk - anything with a reasonable protein content. Also, were you alone? i have found that when my beloved wraps two loving arms about me and hugs me gently and tenderly, but firmly, i will calm down. not completely, but enuff to catch a breath or two. but i still prefer the dyskinesia to being off - the spasms and tightness of dystonia, the freezing in a doorway - it took me 10 minutes to get out of my own front door yesterday - the sudden crashes without warning as i switch from a reasonable 'on' state to collapsing on the floor in the supermarket - 'off' in less than two minutes -0 i would still rather be dyskinetic. but this is the reason i am participating in the nih study on dyskinesia. may i suggest that you consider trying it too? If nothing else, we would get to meet! hilary blue 51,32,23 > Sandra Norris wrote: > > Dyskinesia, A Dance I Would Prefer Not to Be a Part Of ! > > Last Thursday, because of a mistake I had made in mixing my Liquid > Sinemet I suffered eight hours of dyskinesia. After the dyskinesia > ended, to say the least, I was as weak as ten-day-old dishwater. I > could not find a comfortable position to sit. I could not find a > comfortable position to lay down. I was in so much pain that I was > sure that I would lose my mind before morning dawned. > > At 3:00 in the morning I found myself in a bathtub filled with as hot > water as I could stand. I had so many emotions going through me. You > would think after 20 years of this disease called Pd I would be more > careful in mixing my Sinemet. Future Hint: Do not mix medicines > without proper lighting. It was not enough to be battered and bruised > from the dyskinesia; I had to add misery by berating myself for the > mistake I had made. > > Before I knew it I had my arms literally wrapped around my legs in a > crunched up sitting position. I had begun to weep and to cry out from > the pain. I actually felt if I could just crawl inside myself, inside > under the skin, deep within, maybe, just maybe I could search out and > destroy the Charlie Horses that had taken up residence in every muscle > of my body. I came to a realization that there is no way possible to > turn myself wrong side out. I sat in the hot water and actually > imagined turning myself wrong side out. By turning wrong side out I > would not be able to see the many bruises that the dyskinesia caused. > If the bruises were hidden, no stranger would see them. No one would > ask where the bruises came from. > > Dyskinesia does not have the manners to first ask your permission to > dance. It will rudely sweep you off your feet and commence to force > you into a jitter-bug from hell. All the while, you are praying that a > polite entity would tap you on the shoulder and gently take you in its > arms and whisk you away to a calmer place, a place of healing, a place > of rest. Is there such a place where there is no PD? > > Until that heavenly call, Naproxen and Flexeril will have to heal the > hurts. > > Sandra Norris > > > > > > > > > > > > Sandy Norris 40/28/20 check my new site.. > www.plwp.org/sandys_parkie_porch.htm > "Faith is the daring of the soul to go farther than it can see."