Dear Debbie, I cannot begin to imagine the grief and loss you must feel, but I grieve with you. Your mother is an inspiration still, through your words. She is truly a hero. You have my deepest sympathy. Sincerely, Kathrynne Holden Debbie White wrote: > > It is with unbearable sorrow that I tell you that my mother, Joyce Scaduto, > died on Sunday. She was 71, diagnosed with PD in 2/97 and rediagnosed with > a Parkinson's Plus disease 9/98. She was buried today. > > I have subscribed to the list from the onset of her diagnosis and am so > grateful for the information I received -- Rita, Norma, and Victoria hold a > special place for me. Since her rediagnosis, I was less active here because > I also subscribed to the MSA list. But throughout, I read the postings. > > My mother was a kind and caring person who never complained about her > illness. I am grateful that she had her hair done and went shopping a day > before she died. She could no longer walk because her feet were curled in > and she had no balance. Her head, too was curled into her chest severely. I > have never seen a person more crippled than my mother with her disease. > Despite this, she managed to redefine a new standard of normal constantly > and figure out what was possible at that stage. She was my hero. As one of > her friends said to me, > "I've know your mother for 100 years and I never knew she had this in her." > Me neither. I am so proud of her. > > Please remember my mother tonight. And honor her not only by reaching out to > someone who needs it, but staying the course with those that needed it > awhile ago that you might have forgotten about. That was what my mom was all > about. Debbie > > Debbie White > > [log in to unmask] -- Kathrynne Holden, MS, RD Author: "Eat well, stay well with Parkinson's disease" "Constipation and Parkinson's" -- audiocassette & guidebook "Guidelines for Medical Nutrition Therapy for Parkinson's disease" & Risk Assessment Tools "Risk for malnutrition and bone fracture in Parkinson's disease," J Nutr Elderly. V18:3;1999. http://www.nutritionucanlivewith.com/