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Ray, At 07:22 PM 12/03/2000 -0600, you wrote: >I feel the same way...sooner would be better. > >my sister, the medical doctor, told me >i have a ticket to europe >if there is a pd break through there... >we were talking about how there is research >going on that is not happening in the USA >and not supported by the FDA > >sometimes drugs are developed in europe first >then go through years of more testing by the FDA >Ibuprofen is a good example-- >approved in europe for Meniurres (sp?) disease >(chronic ringing in the ears) >--it was initially tested in the US for its effect on infarction >--then there were toxicity studies >--then a few years later > it was available over the counter every where > >it seems that pd is a complicated disease >requiring multiple levels of treatment >treating motor symptoms, treating autonomic symptoms, >neuropreservation, restoring lost neurons, etc... > >there are no easy answers >we will miss and grieve for those who succumb >--------on the edge of the prairie abyss--------- >Ray Strand >48/dx PD 2 yrs/40? onset/retired You know Ray, you bring up a good many points, a few I've been meaning to discuss with the PD Family. I know, beyond any shadow of a doubt, that PD seems to be harder on the young. At first I thought it might be because you don't have the financial security we older PWP's do, but then along came MJF and blew that theory right through the floor board. He certainly, unlike Sandra Norris, doesn't have to worry about if he will eat ,or take his RX's this month, and yet he definitely suffers with PD. I have a good friend in the Netherlands, whom I met on this list 5 years ago. When he first was diagnosed with PD, they retired him and put him on a pension. He's a journalist and does free-lance work, but only works part time. Also, he is given his RX's, and many times in the past 5 years ,he has had them for several years before they are approved for use in the USA. I wish I knew how to get some of these things started in the USA. Why should a person have to make a choice between a meal or their RX? Why does everything in the USA take so long to accomplish? What do they think a Parkie will do till 2003 before these RX Bills are initiated? 3 years to a PWP is like dog years, they count for a whole lot more. I know, on my tombstone they are going to write: SHE COULD ALWAYS SEE THE PROBLEM BUT WAS UNABLE TO COME UP WITH THE SOLUTION!! just me, Marjorie 68/58/55 ********************************************************************************************* Shortcut to Mail Options click here: http://parkinsons-information-exchange-network-online.com/mailopt.html Home of John Cottingham's PIENO. My Phone # 000-000-0000 **********************************************************************************************