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Derek and others whom this may apply to, I read posts and listen to person's thoughts about these diseases. I always seem to see something like the following letter when I myself am frustrated at times with myself, healthy people, and ill person's laziness and inadequacies. This AM when I saw a post about anothers loved one, I stop myself and thgt. I remember when I was in a similar situation in my eyes. I remember hearing ' do u know about this disease?' make it the next best <x time>damm time of ur life.' 'what haven't u done that u still want to do if u weren't' this ill?' ' make sure ur son knows ur not abandoning him.' and my girlfriends kept telling me to read the book of Jobs' i thght. what the heck is going on. So I read it and thght. 'AND??' I read it again and thought 'and???' jeeze I must have read that book til i memorized it and thght. 'AND???' Gosh was I a fool. Sometimes I still am:) I had a hospice nurse in my bedroom, talking to a priest over the phone (rather listening to him with my headset that was placed on my head before my husband went to work), another time a secretary from my old job prating for me thru conference calling! My husband and I are young and he would be devastated if he didn't do research and teach. He is now learning about language and neurology more and apply structural engineering to neurological movement. That is his way of dealing with the diseases and helping people in his mind. I understand he can't be with me as much as some of the elders with the same problems, but I wish others would and I wish I would all the time too. Ssoooo....caregivers don't feel the guilt concerning ur presence about being with ur loved one 24 x7. Talk to someone in person about ur dealings. One person can not do it all. When I was in my bed and the times I was in acute rehab, subacute, and a nursing home I use to talk to the chaplain, or my girlfriend, chat room buddies on Pirch, a psychologist, and my docs. Severity and fast progression is difficult to handle at times. What I am hoping to get across here is Thank u to the person who wrote their post about their wife. It brought me back to understanding real fast and out of anger over something that can wait til Monday. I am sadden about the ill wife's progression and her husband's stress. However, I am so happy that that his wife has such determination. That will help her alot. She understands I am sure that her husband is not there 24X7. I hope that the spouse continues to put faith in God, medicine, and his wife's determination, in keeping himself healthy, and an advocate for his wife's care. I will thank God that I saw ur post and hope that u continue to know He is with u and ur wife. Sincerely, Nancy M.