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sure anytime audrey:) nancy m. > audrey skrzyniarz wrote: > > Nancy, > > I have been reading your postings for some time but today's made me > stop and think about how you must feel as one who is a pwp-- > especially one who is younger. I can only imagine how other people who > may be obtuse or self serving must affect you. It isnt that you do not > care nor have concerns for others who are facing the same things that > you may be facing, or have already faced, it is that sometimes it must > be more than you can accept. I use that word only as a word to > describe how difficult it must be to stay positive knowing no one is > able to help that much no matter how much they care. You may know that > I have no real contact with my pwp, and it is true that I have not > experienced anything as all of you are, and especially those who are > young onset pwps. I have to guess what it must be like to face an > illness that affects not only your life but others that are part of > your life as well. I think so often since I met my pwp, and later > others on the list, that most of us take our lives for granted. Our > health we complain about to anyone who will listen and yet do we > celebrate our good fortune? Usually we are too busy living the lives > we have to stop long enough to even appreciate the moment we are in. > For you and all of you that I call my friends or know by their words, > I admire you no matter if you have cranky moments or show anger at > your cirumstances. If anyone deserves to express all of this you all > do; your feelings should be validated. I think how hard it must be to > be ill, in pain, feeling isolated, and knowing that in many ways you > are alone in this. I think we who are not a pwp try either to pretend > it will be alright at some magic moment in the future, or live with > the fear buried deeply inside afraid to discuss it or face it most > likely. But it is you who guide your loved ones to acceptance and it > is you who put the lie to all of the platitudes that well meaning > friends or relatives may offer as solace. To be able to say this is my > life and this is my situation not yours is your right. And is there a > real solution to everything ? I dont think so and I am sure you would > say NO there isnt ... > > Thanks for listening to me and my own soap box Nancy.. > > *seattle* Audrey > friend of Aussie John 49/42/38? > > * seattle* audrey