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Hi Perry and listmembers: Perry, what a wonderful offer; thank you. If I can scrape together the airfare, and the UCSF sleep study I'm supposed to be in will allow me to go, it would be too great an opportunity to pass up. I think I should put this out to some of my West Coast advocates, and see if they don't agree and would be willing/able to go. Anybody from other regions excited about this conference especially in light of Perry's offer? Charlotte Mancuso Perry Cohen wrote: > > Health Action 2001 Grassroots Health Advocacy Conference > > Washington, DC January 25th. to 27th. 2001 > > http://www.familiesusa.org/pubs/conbro.htm > > > >Does anybody know about this group's background, or been to this conference > >before? Anybody going? Anybody ever think about converging on Washington > >in mass? > > > >Charlotte Mancuso > > I have never been to the conference, but I know of the organization. My > impression is that it is an effective organization. Their website describes the > organization: > > "Families USA is a national nonprofit, non-partisan organization dedicated to > the achievement of high quality, affordable health and long-term care for all > Americans. Working at the national, state and community levels, we have > earned a national reputation as an effective voice for health care consumers for > over 15 years." > > The mission certainly fits my interests in Quality, Access, and Delivery of > Parkinson's Care and I will be in DC at the time of the conference (This is easy > for me to say). If anyone is interested in attending I will help in any way > possible (e.g. I can try to locate housing in private homes). If there is > enough interest I will arrange some PD focused briefings and meetings with > Federal Agencies and/or Congressional Staff. It could be an opportunity to > promote the need to balance our strong advocacy for basic science with an > additional emphasis on public health issues to help current PWP. > > Let me know what you think.