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HELLO ALL

A FEW WORDS HOPING FOR A RESPONSE TO HELP ME LIVE THRU THE NEXT FEW MONTHS-
HOPEFULLY WILL MANAGE ON MY OWN A BIT BETTER AFTER.

STARTED SINEMET NOV. 22.  TRIED REQUIP BUT NO CHANGE IN TREMOR.  WENT TO
MIRAPEX CAUSED MY LEGS AND BACK TERRIFIC PAIN SO THE NEUROLOGIST PRESCRIBED
PERMAX.  ON OCTOBER, WENT TO SEE HIM IN WHEEL CHAIR - HAD BECOME ALMOST AN
INVALID.

WHEN HE EXPLAINED THAT PARKINSON WAS CAUSING THE STIFFNESS, AND THAT PERMAX
COULD'NT ACCEPT THE FULL LOAD, I UNDERSTOOD THE DILEMMA.  AFTER EXPLAINING
THAT IT WOULD TAKE TWO TO THREE WEEKS BEFORE ANY RESULTS WOULD SHOW, I HAD
TO CHOICE BUT TO BEGIN THE NEW TREATMENT.

PARKINSON AND I MET IN DEC. OF 94 - TREMOR MOSTLY.  OVER THE YEARS, THE
DISEASE SHOWED ITS UGLY HEAD BUT ... I WAITED TOO LONG.   SOME PEOPLE WANTED
ME TO START ON SINEMET RIGHT AWAY, BUT I THOUGHT  I WAS INVINCIBLE.  iN JUNE
OF 99, MY HUSBAND WAS DIAGNOSED W ITH LUNG CANCER, AND WE SPENT SIX WEEKS IN
THUNDER BAY.  HE RECEIVED 30 TREATMENTS OF RADIATION AND CHEMO.  LATELY THE
NEWS HAVE BEEN BAD - HE IS NOW ON LIQUID  MORPHINE, PAIN KILLER DRUGS, ETC,.
THE PAIN IN HIS RIGHT SHOULDER IS CONSTANT - HE HAS LOST 35 LBS., BUT
BATTLING ALL HE CAN.

PART OF MY BOUT WITH PARKINSON HAD TO DO WITH THIS EPISODE.  BOOKS HELP A
LOT, MEMBERS OF THE LIST OFTEN GIVE TERRIFIC ADVICE AND CARE - IT'S GOOD TO
BE BACK.  HOME CARE HELP WITH THE HOUSE, THE VON (NURSES) ARRANGES THE
MEDICATION, WHILE OTHERS KEEP TAB ON YOU WITH WEEKLY VISITS TO THE HOUSE.
THE OCCUPATIONAL THERAPIST WILL BE HERE AT 10:30 AM TO DO EXERCISE.  I
SUPPOSE THE PLAN IS TO KEEP US AT  HOME AS LONG AS WE CAN, AND I BELIEVE IT
MIGHT WORK.

QUESTIONS, COMMENTS, ADVICES WILL BE APPRECIATED.  I WILL TRY TO FOLLOW UP
AS MUCH AS I CAN.  MANY REGARDS TO ALL.


F0leurette