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check out www.pallidotomy.com and send a message to Dr. Iacono he has helped many pwp. Bob > From: Fleurette Leonard <[log in to unmask]> > Reply-To: "Parkinson's Information Exchange Network" > <[log in to unmask]> > Date: Thu, 7 Dec 2000 06:56:33 -0600 > To: [log in to unmask] > Subject: Re: UPDATE > > HELLO ALL > > A FEW WORDS HOPING FOR A RESPONSE TO HELP ME LIVE THRU THE NEXT FEW MONTHS- > HOPEFULLY WILL MANAGE ON MY OWN A BIT BETTER AFTER. > > STARTED SINEMET NOV. 22. TRIED REQUIP BUT NO CHANGE IN TREMOR. WENT TO > MIRAPEX CAUSED MY LEGS AND BACK TERRIFIC PAIN SO THE NEUROLOGIST PRESCRIBED > PERMAX. ON OCTOBER, WENT TO SEE HIM IN WHEEL CHAIR - HAD BECOME ALMOST AN > INVALID. > > WHEN HE EXPLAINED THAT PARKINSON WAS CAUSING THE STIFFNESS, AND THAT PERMAX > COULD'NT ACCEPT THE FULL LOAD, I UNDERSTOOD THE DILEMMA. AFTER EXPLAINING > THAT IT WOULD TAKE TWO TO THREE WEEKS BEFORE ANY RESULTS WOULD SHOW, I HAD > TO CHOICE BUT TO BEGIN THE NEW TREATMENT. > > PARKINSON AND I MET IN DEC. OF 94 - TREMOR MOSTLY. OVER THE YEARS, THE > DISEASE SHOWED ITS UGLY HEAD BUT ... I WAITED TOO LONG. SOME PEOPLE WANTED > ME TO START ON SINEMET RIGHT AWAY, BUT I THOUGHT I WAS INVINCIBLE. iN JUNE > OF 99, MY HUSBAND WAS DIAGNOSED W ITH LUNG CANCER, AND WE SPENT SIX WEEKS IN > THUNDER BAY. HE RECEIVED 30 TREATMENTS OF RADIATION AND CHEMO. LATELY THE > NEWS HAVE BEEN BAD - HE IS NOW ON LIQUID MORPHINE, PAIN KILLER DRUGS, ETC,. > THE PAIN IN HIS RIGHT SHOULDER IS CONSTANT - HE HAS LOST 35 LBS., BUT > BATTLING ALL HE CAN. > > PART OF MY BOUT WITH PARKINSON HAD TO DO WITH THIS EPISODE. BOOKS HELP A > LOT, MEMBERS OF THE LIST OFTEN GIVE TERRIFIC ADVICE AND CARE - IT'S GOOD TO > BE BACK. HOME CARE HELP WITH THE HOUSE, THE VON (NURSES) ARRANGES THE > MEDICATION, WHILE OTHERS KEEP TAB ON YOU WITH WEEKLY VISITS TO THE HOUSE. > THE OCCUPATIONAL THERAPIST WILL BE HERE AT 10:30 AM TO DO EXERCISE. I > SUPPOSE THE PLAN IS TO KEEP US AT HOME AS LONG AS WE CAN, AND I BELIEVE IT > MIGHT WORK. > > QUESTIONS, COMMENTS, ADVICES WILL BE APPRECIATED. I WILL TRY TO FOLLOW UP > AS MUCH AS I CAN. MANY REGARDS TO ALL. > > > F0leurette >