Nancy,
I have been reading your postings for
some time but today's made me stop and think about how you must feel as one who
is a pwp-- especially one who is younger. I can only imagine how other people
who may be obtuse or self serving must affect you. It isnt that you do not care
nor have concerns for others who are facing the same things that you may be
facing, or have already faced, it is that sometimes it must be more than you can
accept. I use that word only as a word to describe how difficult it must be to
stay positive knowing no one is able to help that much no matter how much they
care. You may know that I have no real contact with my pwp, and it is true that
I have not experienced anything as all of you are, and especially those who
are young onset pwps. I have to guess what it must be like to face an
illness that affects not only your life but others that are part of your life as
well. I think so often since I met my pwp, and later others on the list, that
most of us take our lives for granted. Our health we complain about to anyone
who will listen and yet do we celebrate our good fortune? Usually we are too
busy living the lives we have to stop long enough to even appreciate the moment
we are in. For you and all of you that I call my friends or know by
their words, I admire you no matter if you have cranky moments
or show anger at your cirumstances. If anyone deserves to express
all of this you all do; your feelings should be validated. I think how
hard it must be to be ill, in pain, feeling isolated, and knowing that in many
ways you are alone in this. I think we who are not a pwp try either to pretend
it will be alright at some magic moment in the future, or live with the fear
buried deeply inside afraid to discuss it or face it most likely. But it is you
who guide your loved ones to acceptance and it is you who put the lie to
all of the platitudes that well meaning friends or relatives may offer as
solace. To be able to say this is my life and this is my situation not yours is
your right. And is there a real solution to everything ? I dont think so
and I am sure you would say NO there isnt ...
Thanks for listening to me and my own
soap box Nancy..
*seattle* Audrey
friend of Aussie John
49/42/38?
* seattle* audrey