----- Original Message -----
Sent: Saturday, December 02, 2000 9:40
AM
Subject: re a thoughtful post for Nancy
in response
Nancy,
I have been reading your postings
for some time but today's made me stop and think about how you must feel as
one who is a pwp-- especially one who is younger. I can only imagine how other
people who may be obtuse or self serving must affect you. It isnt that you do
not care nor have concerns for others who are facing the same things that you
may be facing, or have already faced, it is that sometimes it must be more
than you can accept. I use that word only as a word to describe how difficult
it must be to stay positive knowing no one is able to help that much no matter
how much they care. You may know that I have no real contact with my pwp, and
it is true that I have not experienced anything as all of you are, and
especially those who are young onset pwps. I have to guess what it must be
like to face an illness that affects not only your life but others that
are part of your life as well. I think so often since I met my pwp, and later
others on the list, that most of us take our lives for granted. Our health we
complain about to anyone who will listen and yet do we celebrate our good
fortune? Usually we are too busy living the lives we have to stop long enough
to even appreciate the moment we are in. For you and all of you that I call
my friends or know by their words, I admire you no matter
if you have cranky moments or show anger at your
cirumstances. If anyone deserves to express all of this you all do; your
feelings should be validated. I think how hard it must be to be ill, in
pain, feeling isolated, and knowing that in many ways you are alone in this. I
think we who are not a pwp try either to pretend it will be alright at some
magic moment in the future, or live with the fear buried deeply inside afraid
to discuss it or face it most likely. But it is you who guide your loved
ones to acceptance and it is you who put the lie to all of the platitudes
that well meaning friends or relatives may offer as solace. To be able to
say this is my life and this is my situation not yours is your right. And
is there a real solution to everything ? I dont think so and I am sure you
would say NO there isnt ...
Thanks for listening to me and my
own soap box Nancy..
*seattle* Audrey
friend of Aussie John
49/42/38?
* seattle* audrey