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Earlier today? I guess, this was posted. I thought this list was one of support, and not a strictly "hard" information. Since this seems to be the direction the "new" vocal majority are pushing, I will not be posting anymore of my poems. For those wishing to recieve them, please send me an email at [log in to unmask], or [log in to unmask], and I will start a new mailing list. To all those who have left or gone into lurk mode, I for one appreciated your posts, and will miss them. Life is hard enough with this disease, and I regret losing an outlet which gave me so much pleasure, just as I assume those who left the list felt as well. I spent 4 hours driving through a storm today to get to Mayo Clinic, and another 5 driving home. I have to be back there at 8am in the morning, so I suspect it will be a short night and a long drive again. While at Mayo, I was waiting in line when my legs decided to quit working, and I did a spectaculor fall, bending one of their chairs and some ribs. I am not writing this for sympathy, but just pointing out the wonderful world of pd that we all live in or with daily. It saddens me that the part of this list I felt was the most important, the human part, is being de-imphasized while the medical jargon junk which I can get anywhere, is what will be left. But as someone else said today, this list doesn't belong to us. Good luck to all, God Bless to those who accept it, and Merry Christmas bob aka tex, signing off parkinson list The kinds of things that I would keep to a minimum on the list include most of lifes joys and sadnesses. We all have life experiences of birth, death and illness. This is the common bond that all people share. Any forum public or private could be used as a vehicle to express those life experiences. This may not be the best place to do that. This list , I had hoped, would focus on the PD experience of the participants and the efforts of others to improve the quality of life for those of us that are caught up in this lousy disease. Managing the technical (hard) information about the disease may actually be easier that managing the non-technical (softer) side of the disease. The hard side deals with drugs, surgery, therapy, injections, walkers, wheel chairs tremors, rigidity etc. We seem to do a good job of policing mis-information in this area. That is an important component. I have found this aspect of the list to be invaluable. The soft side deals with the emotional trials, the loneliness, lost memories, and many of our life experiences that may be related to PD, often are unrelated to PD yet may impact PD because it is a neurological disorder. We do not like this area to be policed. Poetry, praises, sympathies, day to day courtisies and rudeness are all part of the soft side of life. They are common to all of us and because of this commonness they are thought to be "in our province" or within our right of free expression. This makes them very difficult to reign in. Unfortunately this may be exactly what the list needs to do if it is to serve our PD needs first and foremost. While we can not deny ourselves of these feelings, perhaps this list should not be used for that pupose. I think it may be time to reign in the softer more general part of the list and expand the more focused commentary about PD. There is a time and a place for everything. This place (The List) is for PD sharing. The time for a shift back to a PD focus may be now. I for one would welcome that change. Respectfully, Bob Martone [log in to unmask] http://www.samlink.com/~bmartone _____________________________________________________________________________________ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com