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Barb, could this be a form of dystonia? I understand that dystonia may
occur anywhere, including facial, jaw and neck muscles. Could your
neurologist offer any explanation? I can't offer any help other than
that, because I know dystonia is very difficult to for neurologists to
treat; but I hope you and Fred will pursue this, and consult with him. I
will be thinking of you and praying for good results.
My very best regards,
Kathrynne

Barbara Blake-Krebs wrote:
>
>    I think my mouth and throat may fall down into my stomach.  I am having
> pain in my mouth that feels like a chain is pulling my lower gums loose from
> my jaw and my mouth is getting smaller.  My GP says this is a sensation, but
> it is physically impossible.  I have a lot of pain and I am scared because
> right now I can only feel fiber like pieces of hard plastic "ribbon".  Is
> this perestitia or am I in danger?  What should I do? Barbara Blake Krebs
> [log in to unmask]  913-677-4419



--
Kathrynne Holden, MS, RD
Author: "Eat well, stay well with Parkinson's disease"
"Constipation and Parkinson's" --  audiocassette & guidebook
"Guidelines for Medical Nutrition Therapy for Parkinson's
disease" & Risk Assessment Tools
"Risk for malnutrition and bone fracture in Parkinson's
disease," J Nutr Elderly. V18:3;1999.
http://www.nutritionucanlivewith.com/