 |
 |
At 09:20 2000/12/27 -0500, mary ann wrote: >> >"This is exciting news because this drug is the first that showed even >> >the possibility of slowing the course of this disease, not just treating >> >its symptoms," said neurologist William Langston, MD, of The Parkinson's > >This article illustrates why generalities shouldn't apply >in PD. We've heard over and over from our doctors that >Eldepryl (Selegiline) doesn't work well for those suffering >PD. Yet every time we try to stop the drug, my husband's >condition deteriorates. Eldepryl works for him - we don't >know why, but it does. He does have a very unusual case of >OPD, so the dynamics at work in other cases might not apply >to him. The moral of the story is......if the drug works >for an you, keep it - if it doesn't, drop it. Don't worry >about what the literature says. > >God bless >Mary Ann (CG Jamie 61/21) > gosh mary ann! your advice almost sounds dangerous to me! "if a drug doesn't work for you, drop it" ???!!! how about adding "after consultation with a movement disorder and pd specialist" and "always remembering to titrate sloooooooowly slooooowly" and "always keeping in mind 'joe's story' " [on my website - use the search facility there] ? there are some generalities that DO apply in pd [i.e. levodopa is the "gold standard" for diagnosis and treatment] but the disease doesn't fit the initial limited ideas about its characteristics and the thinking now is that it may be a 'family' of disorders ... funny i have never heard 'over and over' in the 12 years since i started it that selegiline didn't work... that one failed british study is the only negative one that i have noticed and long ago i read [and then experienced for myself when i ran out of it] that selegiline gives symptomatic relief [i.e. it relieves some of the symptoms of pd] and has frequently been used as a 'starter' med on its own with fewer problems than the dopamine agonists and that potential added benefit of 'neuro-protection' janet paterson, an akinetic rigid subtype parkie 53 now /44 dx cd / 43 onset cd /41 dx pd / 37 onset pd TEL: 613 256 8340 SMAIL: POBox 171 Almonte Ontario K0A 1A0 Canada EMAIL: [log in to unmask] URL: http://www.geocities.com/janet313/