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.  The moral of the story is......if the drug works
> >for an you, keep it - if it doesn't, drop it. Don't worry
> >about what the literature says.
> gosh mary ann!
>
> your advice almost sounds dangerous to me!
>
> "if a drug doesn't work for you, drop it"  ???!!!
>
> how about adding
> "after consultation with a movement disorder and pd specialist"
> and
> "always remembering to titrate sloooooooowly slooooowly"
> and
> "always keeping in mind 'joe's story' "
> [on my website - use the search facility there]


After dealing with years of PD and 3 neurologists, my husband and I have
learned that we are actually in control of my husband's medication regimen.
Our neuro suggested dropping Eldepryl last year.  We tried - it was a grave
disaster.  Another neuro visited our support group and once again apprised
us of the fact  that Eldpryl was a non-useful med and probably should be
dropped from my husband's drug regimen.  She was adamant that studies had
indicated that Eldepryl not only didn't work for PD, but actually
accentuated  dyskinesia - a major problem for my husband.  Once again, we
stopped the drug (titrated, really) and once again my husband 'hit the
wall.'

   It is important to listen to doctor's advice - but it is also imperative
to recognize what reactions  occur when meds are taken.  Our neurologist
doesn't argue when we suggest a med works - or doesn't.  While we never
increase a med without consulting our neurologist, we have decreased, and
sometimes stopped (after titrating) meds that cause problems.  Our
neurologist is aware and doesn't object.
--------
God bless
Mary Ann