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Howdy folks I have only been with the list for about 10 months so perhaps that is why I find that I'm really confussed with this post. - is this from Alan Bonander or from John Cottingham....and who is David Boots. Was there an earlier post that I missed?? Can someone please explain this to me?? Thanks for your help. Kelly in Calgary ----- Original Message ----- From: John Cottingham <[log in to unmask]> Sent: Thursday, December 28, 2000 6:13 AM Subject: Voices From the Past: Alan Bonander > Subject: David Boots > > TO: David > > I needed that. There is nothing like a sobering minute. I give a lot of > credit to those who do not have a care partner. Doing everything yourself > and not having someone there when needed, both physically and emotionally > is difficult. There has always been a need for strong support of our single > members in the PD community. > > As to the incident on the front porch, don't think of it as peeing on > oneself, think of it as "Whissing on the World". I don't know anyone with > PD or a carepartner who didn't at some point want to "Whiss on the World". > > There are three centers in the US that I can recall performing fetal tissue > transplants. They are U. of Colorado (Dr. Curt Freed), Good Samaritan > Hospital (Dr. Jacqus) and somewhere in MA where they are doing the pig > fetal tissue transplants. Outside of the US, there is Cuba, Sweden and China. > Obviously fetal tissue transplant, pallidotomy and medications will not > give you a new mid-brain. They can buy some time. > > I have this dream that something will happen by the end of this decade. Two > years ago, I had doubts anything could happen this soon. Today, the > scientific knowledge is growing exponentially. I have great hope now that > science will break the code by 2000. In the mean time decisions will need > to be made on how to buy time. > > One of the best ways to buy time is to be active. This means to get > exercise, get out in the public and be a part of life. Looking inward for > strength is like peeing on oneself. Looking outward and being a part of > life is like "Whissing on the World". It gives purpose to life. > > One of the problems of being 37 with a chronic illness is that all your > friends are building their lives, advancing careers, and the last thing > that is on their mind is the possibility of chronic illness. They are the > ones who will often say "When things get really tough, give me a call." They > have ecome "bad weather" friends. It is a sad observation on society. You > need to make new friends, which means becoming a part of different groups. > This is not easy and requires a lot of effort on your part. Everyone I > know who has done this, has found it very rewarding. > > Suggestions on where to look depends on your likes and dislikes. Music is > a wonderful part of your life. You may find playing in a blue grass band is > too taxing. How about using your music leading singing at support group > meetings? There are many places you can use this talent to make people > smile, clap their hands, stomp their feet and make their heart young. In > our phone call I asked you to start a support group for young people in Santa > Rosa. This you agreed to. > > It really pays once in a while to wear your heart on your sleeve. This > email support group really responded to your tears. There are people who > care about you, David. Thanks for crying out, for now the healing can > start. I really enjoyed our phone call. > > I have known David since about the day he was diagnosed with PD. David can > express emotion, something the males in this world need to learn. He has > fought ADA with his employer, be participated in the Washington Forum > recently on the Udall Bill. I think the assistant in Sen Feinstein's > office will never forget David. > > Hang in there David, we care and are there for you. Thanks for waking us > all up to the emotions of PD. I needed it and I am sure others did also. We > will keep in touch. > > > Regards, > Alan Bonander > [log in to unmask] > [log in to unmask] > Change your Parkinsn email settings at: > http://parkinsons-information-exchange-network-online.com > Click the Parkinsn Mail Management link > John Cottingham >