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Nancy, you hit the nail on the head. YOU AND i AND OHERS SHOULD FORM A NEW GROUP.Your story is worth re-telling. So what do we do?...form groups and seek congregate housing or group housing, with other Young Onset Parkinsonians? Do we settle for "adult day care?" Do we push to create young-onset PD-related adult day care or exercise, therapy, educational and entertainment groups? I wonder if younger PWP's have banded together in ANY country or state, to create small communities which include PWP's and care providers, and that makes sense. And how do we arrange for those of us who need more care at night , but want to avoid a nursing home, like me, watching the calendar before I have a neurosurgery evaluation (for me, it is on Jan 10)? My caregiver tonight is out at the BARS drinking, although he was supposed to be here 2 hours ago.... THis behavior is certainly due to the State paying $15.00 for the whole night . I have had to transfer my potential day coverage, on the payment request sheets that are co-signed, to the nighttime , so that each night worker's check is greater. THe Alpha ONe administrators suggested that to me. THen I do as well as I can during the day, a strategy that is not win-win. I suspect that they are cutting my PCA hours to to retaliate for my being vocal and persisitent about changing the night rate of pay , up to a minimum of $90.00. My neurologist's request for night-care, which is going in tomorrow morning, bfor night help from a qualified CNA, HHA, or PCA, may trigger the loss most of most of my daytime PCA hours. Ivan :-) On Wed, 3 Jan 2001 17:41:11 -0500 nancy <[log in to unmask]> writes: > Afternoon. > > Waiver medicaid program in Ohio is for.... (CUT)