 |
 |
^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 51/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses 13 deg. F :-) ******************************************************************** Dear Ken, Camilla, and PIEN'ers My health is worsening this winter. ISome of this is definitely stress-related. I am trying to manage in the face of a HUGE cut in my home care hours. There is NOW an opportunity for anyone to express your concerns about my care being cut from 13 to 5 hours per day. This is about to be decided. PLEASE, anyone who wishes to support me, you can place a telephone call to the office of Mr. Ron Stoodley, in the Maine DHS. He will decide whether I get my care hours restored to 13, or not. I have had 13 hours since 1998. His office is staffed by Barbara, Cathy and Caetlin, and can be reached at this phone number: 207 287 - 3610. Camilla, please send this message to the PD caregivers' listserve if that is possible. Two nearby APDA support groups have also called Mr. Stoodley's office today. These are Capitol District (Maine) and Greater Portland (Maine). They tell me that the Maine DHS admits that it does not understand YOPD, and needs to learn about it. THIS IS AN OPPORTUNITY TO EDUCATE the people whose decisions rule my immediate future. Thank you, friends. Ivan Suzman 51/39/36 On Mon, 15 Jan 2001 23:01:53 EST [log in to unmask] writes: > Good luck, Ivan, I hope you prevail and in doing so can help the > others in > your same predicament. > Ken Becker