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Marco,I am a nurse and caregiver to my husband who has had PD for 29 years.Now he is the opposite ,he shuts me out and stays in his little world. Doesn't want to go out only when forced or if he has something he wants done.He has no consideration for my feelings so I am just a care giver.Its a very lonely marriage right now.We have four grown married children who aren't far away so I get to see my 9 grandchildren. I am also the breadwinner so I work taking care of premie babies born too soon. They give me undying love and attention that I could never get from David.It just seems strange that we are in the opposite situation.I feel for you. Pauline ----- Original Message ----- From: "Marco De Michiel" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, January 25, 2001 6:11 AM Subject: support > Hi, > > I'm Marco, in the UK. > > > I came across your group while searching the web for info on PD. I was > diagnosed 4/93 and took early retirement 8/96. I am almost 52. I started a > monotherapy of Pergolide 2/99 and by that summer started driving again. I > will never forget July 2nd when I drove my car to Church and back (on the > first Friday of each month there is a mass at 6:30am) I cried there and > back, and through mass and thanked God for helping me. > > I have tried various complementary therapies: homeopathy, Reiki, Alexander > technique, etc. The first had no effect at all (a complete waste of money) > but the Alexander technique was the beginning of a turning point in that it > not only helped my balance but my teacher, Angel as I call her, led me to > taking the current medication; and also introduced me to Reiki. She has also > given me toning treatments - this is where sounds are made and aimed at the > whole person or part of the body. > > Even though I have difficulty walking at the moment because my legs, my > knees in particular, are not functioning properly I'm a long way forward > from the darkest days of 97 and 98. I have a very strong will and will not > allow myself to succumb to the horrors of PD. I occupy myself with as much > as I can and still try to apply my professional skills in helping others - I > help many local people with pc problems. I have also discovered that my > consultancy skills can be applied to virtually any situation. > > There is only one sad part to my life a moment and that is I seem to be > dealing with my situation on my own. My wife will occupy her time with > anything but me and I feel she has not accepted PD and therefore by shutting > it out, shuts me out. The physical changes that have taken place have made > me less of a person, one with whom she no longer wishes to be seen, her > vanity does not accept me as I am. Her indifference to my situation is > soul-destroying. My youngest son has become her companion and escort - he is > quite handsome, as I used to be. The feeling of loneliness in my own home is > becoming too much to bear. And when I read the messages in your group of how > some partners support the partner with PD I am moved by the Love and > commitment. I only wish and pray for the same for my life. > > I am very tempted to join the PD cruise on the Pacific coast in the fall > just to demonstrate that I can do something for myself. You see I am left > out of any holiday plans as they all want to go away without me. > > I hope you don't mind my expressing myself as I have but I need to be in > touch with the group such as yours. > > Sincerely, > Marco >