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KEES, YOU ARE WAY OUT OF BOUNDS, MY FRIEND!! On Sun, 4 Feb 2001 21:56:00 -0800 kees Paap <[log in to unmask]> writes: > > Dear PIEN and Caregivers List members: > > > > Dear Ivan, > > > > > It is now almost 08:00 AM on Sunday, February 4, 2001. > > I have been trying to type this message , in intervals, for > nearly > > 3 hours. > > > > It is now almost 9.00 PM on Sunday, February 4, 2001. I am > continuesly > typing now for nearly 10 minutes. I have no idea how long I need to > type > this letter, but I will write it at the end of this letter. > > > Friday night, I had to taxi downtown to Mercy Hospital, and > > abandon my PD-adapted home. I had failed to find overnight > > PCA (personal care attendant) help, and I was feeling > > nearly exhausted. > > Why an expensive taxi, no bus or friend that could bring you to > the > hospital. SNOWSTORM and NO BUSSES LATE AT NIGHT AND IN ANY CASE I AM NOT WELL ENOUGH TO TAKE A LATE_NIGHT BUS. How did you get to the cab? Wheeling or Walking ? ASSISTED BY THE DRIVER, WHILE I USED CRUTCHES > Why don't you stay in bed, NEED TO RESPOND TO DOORS; THE NEED TO GO TO BATHROOM HAPPENS; THE BEDROOM IS NOTALWAYS THE BEST PLACE IN THE HOUSE FOR ME. or if you can't sleep, stay up and read > a book > or watch television? TOO DANGEROUS TO HAVE NO SLEEP ALL NIGHT . I HAVE TO TAKE MEDICINES EVERY 3 HOURS > > > My usual daily PCA care hours , paid to the PCA's by > > the Maine Medicaid Waiver for the Physically Disabled > > (Consumer- Directed), have been assessed for the only time in 6 > years to > > be drastically cut, from 13 hours per day, which I have had since > 1998, > > to 5 hours per day. This is the simultaneous assessment of my > needs > > by the Maine Bureau of Elder and Adult Services (BEAS) and by > the > > Provider Agency, Alpha One, Incorporated. > > > > This happened October 23, at my home. It was very, very strange. > > Instead of > > SNIP SNIP SNIP > > So, what you are asking from me, is that I write a letter to > support your > search for PCA's that you need to pee standing? SORRY, THIS IS NOT WHAT I SAID AT ALL RE-READ IT CAREFULLY. > > Wake up Ivan, we are in 2001 !! You have to make choices, just like > anybody > else. You have to make something of live.....and you have to do that > yourself. KEES, WHO ARE YOU TALKING TO?? KEES, YOU BETTER JUST STOP THIS. DID YOUR PALLIDOTOMY INJURE YOUR THINKING PROCESSES? YOU SEEM TO BE LECTURING ME...AT WHAT EXPENSE?? I DON't NEED THIS UNDESERVED ATTACK If you can't pee standing....sit down and pee, is more > hygienic > also. IF YOU THINK I DON't KNOW THIS, YOU ARE WAY OUT IN SPACE. WHAT"S WRONG IS WITH YOU, NOT ME> > off. There > are many more ways to cope with this dreadful disease. Just ask the > list:) KEES, YOU MUST SURELY KNOW THAT I COPE FAR BETTER THAN YOU THINK. > > Kees Paap > > P.S. please read my poem "Ignore" IT's a LOVELY POEM, and I CAN ONLY SAY THAT YOU are the ONE with a BAD ATTITUDE TRIGHT NOW. YOU WILL LOSE YOUR PIEN PRIVILEGES IF YOU CANNOT KEEP YOUR ATTACKS O - F _F THE PIEN LIST!!! ^^^^^^ WARM GREETINGS FROM ^^^^^^^^^^^^ :-) Ivan Suzman 51/39/36 [log in to unmask] :-) Portland, Maine land of lighthouses HEAVY SNOW, HIGH WINDS 29 deg. F :-) ********************************************************************