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yes, my father has already passed that stage last summer -- email me and I can tell you what to expect and how to cope based on our experiences -- I have tried to find others here in the same situation but there are not many so if you do find others please also let me know, thank you. regards, -Robert ----- Original Message ----- From: "Sandi Worrel" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, February 04, 2001 2:16 PM Subject: Advanced Parkinson's > Dear group, > > I just joined this list. My father is 79 and has advanced Parkinsons. > He has Community Based Medicaid and lives in my home. My mother is the > primary caregiver and has 40 hours a week help from an aide provided by > Medicaid. > > A few weeks ago my father started yelling all the time and repeating > words. He would do it in the middle of the night and started getting > very almost violent. He refused to take his pills a lot and he has lost > a lot of weight. We talked to the doctors and different people and > finally put him in the hospital to have a "psychiatric evaluation" where > they will evaluate his medications. > > Has anyone had this kind of experience? I talked to one woman who said > her father-in-law yelled like that and died 6-8 months later. > > Also - I would like to know about feeding tubes. When my dad was in the > nursing home there was a man that was on one but he was totally > unresponsive like he was in a coma. The case above (father-in-law) they > chose not to use a feeding tube. > > Thanks, > > Sandi