Dear Dave Purdy-- hello from another Central Ohio PD Newsletter reader who
enjoys your writing there---I recall you visited our Oxford support group
at the time you were walking across Ohio !
As for the CG-CP question, several have already responded, and I tend to
agree with them that
"a CG by any name can be as helpful". In Britain and Australia, we are
known as "carers", and some persons choose to use care-partner as you do.
The term caregiver seems to be in more general use, and I don't feel that
one who "gives" care to another is any less a partner, whatever name is
used. That is certainly true of Peter and me. However, I see no reason why
any pair can't call themselves whatever they wish, and I don't think CG is
*more* likely to burden a care-person or cause burnout. That can happen
*whatever* term is used, but I don't want to say caretaker, as that sounds
like someone who mows the grass !
Glad to have input from others also on this. I wouldnote that websites
tend to use CG and that is the term that may help folks find us, when
seeking help.
Please give you partner-wife a big hug---and thanks for raising the question .
Dave wrote:
>Dear Camilla,
>
>I understand the need for a place for caregivers to let off steam. However, I
>think you are failing to, perhaps, prevent early burnout by not
>encouraging the
>PWP's to think of them and treat them as partners, not as caregivers. I
>have been
>afflicted with PD since 1978 and my wife is not my caregiver. Instead, she
>is my
>very precious Parkinson-Partner. As Regional Support Group Coordinator of
>the Ohio
>Parkinson Foundation (C/SE Region), one of my main focuses this year in ow
>to help
>the partner/caregiver. My wife, Della, is our Parkinson-Partner Support Group
>Specialist. We have found that the longer they are thought of as partners the
>better their life will be. Please let me know what your thoughts are on this
>subject.
Camilla Flintermann Oxford,OH
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On PDWebring at : http://members.tripod.lycos.nl/genugten/flinterm.htm
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