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hi all At 21:57 2001/02/28 EST, : Kate Yamokoski wrote: >--part1_d7.2f91a1b.27cf1491_boundary >Content-Type: text/plain; charset="US-ASCII" >Content-Transfer-Encoding: 7bit > >Greg, >I was reading something you posted a while ago where you >mentioned having a 2nd pallidotomy this past summer. Would >you mind sharing about your history? I noticed that you are >only 40 and have had this disease since you were 28. Did you >take Sinemet? My husband is 48, dx. 3 years ago, and is >fearful of Sinemet. He's been on several dopamine agonists >and Symmetril and Selegaline. His major problem is rigidity >with muscle spasm and imbalance. I think we're both afraid >that he might not benefit from Sinemet and if not, there's >not much they can do at this point, until stem cell replacement >someday, hopefully. We're also fearful of dyskenesias from >Sinemet and I'm just fearful cuz the disease seems to really >be progressing.Any input is helpful. Thank you, Kate fwiw in my experience sinemet was and still is a miracle drug your husband should not be afraid of it nor should he be denied its benefits whose decision is it not to take it? what type of medico made the diagnosis and when? fine tuning the med timing and amount becomes more critical after several years of a 'honeymoon' period with sinemet dyskinesia is primarily a sign of over-medication our brains need to be fine-tuned like a maserati and not with a sledgehammer try searching on my website for "sinemet" and "honeymoon" or "miracle" for more details i am disturbed that your message seems to reflect feelings of hopelessness and helplessness imho nothing could be further from the truth not about parkinson's and not in this millennium every situation is unique etc etc but pallidotomy seems to be falling out of favour; i think it should be an absolute last resort try reading the current science reviews at joe bruman's site: http://www.geocities.com/joebruman/ my first symptoms appeared when i was 38; i am now 53 and feeling stronger than ever in all sorts of ways what is your husband's name? will he be joining us? have you joined the caregivers' list? janet ps may i suggest that you turn MULTI-PART MESSAGING off in your e-mail software? it sometimes makes the listserver burp! janet paterson, an akinetic rigid subtype parkie 53 now / 44 dx cd / 43 onset cd / 41 dx pd / 37 onset pd TEL: 613 256 8340 SMAIL: PO Box 171 Almonte Ontario K0A 1A0 Canada EMAIL: [log in to unmask] URL: http://www.geocities.com/janet313/