Print

Print


Dear Camilla,

I understand the need for a place for caregivers to let off steam. However, I
think you are failing to, perhaps, prevent early burnout by not encouraging the
PWP's to think of them and treat them as partners, not as caregivers. I have been
afflicted with PD since 1978 and my wife is not my caregiver. Instead, she is my
very precious Parkinson-Partner. As Regional Support Group Coordinator of the Ohio
Parkinson Foundation (C/SE Region), one of my main focuses this year in ow to help
the partner/caregiver. My wife, Della, is our Parkinson-Partner Support Group
Specialist. We have found that the longer they are thought of as partners the
better their life will be. Please let me know what your thoughts are on this
subject.

Dave Purdy

Camilla Flintermann wrote:

> ESPECIALLY FOR NEW MEMBERS OF THE  PIEN LIST, here's information about CARE !
>
> CARE (Caregivers Are Really Essential) is a sublist of the main PD list. It
> is especially for caregivers (CGs) of  Parkinsonians (PWPs). The need for
> such a list was evident from feelings expressed on the PD list that there
> are times when CGs need to be able to "let off steam" in a place where they
> will not upset their PWPs. Some of us have CareGiver support groups, where
> we can safely express feelings, get practical support, and share
> experiences but some do not. The CARE list , as a "virtual support group",
> serves this need, but DOES NOT shut off the participation of CGs on the
> main list.
>
> CGs who want to join CARE, where there is much less traffic than on the
> main list, may do so as follows:
>
>  Send  in body of post  (not on subject line) to:
>         [log in to unmask]
>
> this command:  subscribe CARE  your full name
>
>  no signature, please.
>
> You will be added to the list, and will receive further instructions.
>
> If you have problems,     for CARE ask Camilla Flintermann
> <[log in to unmask]>
>                       or Jeff Jones (co-owner) <[log in to unmask]>
> ********************
> Camilla Flintermann, CG for Peter 82/70/55
> Oxford, Ohio
>             <[log in to unmask]>
>
>            on PDWebring at
> http://members.tripod.lycos.nl/genugten/flinterm.htm
>
>                         "Ask me about the CARE list for
>                         Caregivers of Parkinsonians ! "
>            And visit the CARE webring at
> http://www.crosswinds.net/~caregivers/index.html
>
> Camilla Flintermann, CG for Peter 82/70/55
> Oxford, Ohio
>             <[log in to unmask]>
>
>            on the web at  http://members.tripod.lycos.nl/genugten/flinterm.htm
>            and also at  http://www.geocities.com/camillahf/index.html
>
>                "Ask me about the CARE list for Caregivers of Parkinsonians ! "
>            And visit the CARE webring at
> http://www.crosswinds.net/~caregivers/index.html
>
> Camilla Flintermann, CG for Peter 82/70/55
> Oxford, Ohio
>             <[log in to unmask]>
>
>            on the web at  http://members.tripod.lycos.nl/genugten/flinterm.htm
>            and also at  http://www.geocities.com/camillahf/index.html
>
>                "Ask me about the CARE list for Caregivers of Parkinsonians ! "
>            And visit the CARE webring at
> http://www.crosswinds.net/~caregivers/index.html