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Sharon; Very Good info. Thanks. I did not have either of the organizations or numbers but have copied this for reference. I'm still real new at this so thanks for all the info. DIANE ----- Original Message ----- From: Sharon YR Habing <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, February 25, 2001 5:09 PM Subject: Re: New Parkinsons Patient > Hi Diane, > Welcome to the club! You've come to the right place to have your > questions answered. I don't have either of those problems so i can't > help you with that, but I'm sure you'll get lots of response from others > who know just what your talking about. If you don't already know about > the APDA and the NPF, I can tell you how to get info from them. The APDA > has a Young Parkinson's Information & Referral Center in Glenview, IL > 800-223-9776 / APDA [log in to unmask] / http://members.aol.com/apdaypd. Ask > for a copy of the "Young Parkinson's Handbook" and to be put on their > mailing list to receive the"Young Parkinson's Newsletter". Dr. Rezak, > the medical director, just had a great article in the newsletter about > pain in Parkinson's. The NPF (800-327-4545) has a lot of literature > including a quarterly booklet - "Parkinson Report", which contains many > informative articles. Ask to be put on their mailing list for that. > I am the facilitator for a Young Parkinson support group so I can offer > a few suggestions concerning a support group. First I would call both > of those 800 numbers listed above and they can tell you if there is a > support group in your area (affiliated with them). Our group splintered > off of a larger group of all ages and stages. It would be nice if you > could find a young on-set group, though they tend to be few and far > between. We have 2 members who drive 1 1/2 to 2 hours to come to our > monthly meetings. Make up "flyers" and post them where ever you find > a place. Be sure to put something in your neurologists office. April is > Parkinson Awareness Month. If your not shy perhaps you could have > something put in your local newspaper or on the radio/TV. And here is > something interesting - our mailing list has 26 names on it , but of > those 26, less then half come with any regularity to the meetings. A few > of them have never been to a meeting, but they all want their names left > on the mailing list! > > Sharon H