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Diane, I gather you live in Michigan.You might contact the Michigan Parkinson's Foundation.There are support groups all over Michigan. They also will send you some basic information.You might also ask to be put on their mailing list. Tel. 800-852-9781 or 248-433-1011. Best Lorraine DIANE/GREG NICOLAOU wrote: > Sharon; > > Very Good info. Thanks. I did not have either of the organizations or > numbers but have copied this for reference. I'm still real new at this so > thanks for all the info. > > DIANE > ----- Original Message ----- > From: Sharon YR Habing <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, February 25, 2001 5:09 PM > Subject: Re: New Parkinsons Patient > > > Hi Diane, > > Welcome to the club! You've come to the right place to have your > > questions answered. I don't have either of those problems so i can't > > help you with that, but I'm sure you'll get lots of response from others > > who know just what your talking about. If you don't already know about > > the APDA and the NPF, I can tell you how to get info from them. The APDA > > has a Young Parkinson's Information & Referral Center in Glenview, IL > > 800-223-9776 / APDA [log in to unmask] / http://members.aol.com/apdaypd. Ask > > for a copy of the "Young Parkinson's Handbook" and to be put on their > > mailing list to receive the"Young Parkinson's Newsletter". Dr. Rezak, > > the medical director, just had a great article in the newsletter about > > pain in Parkinson's. The NPF (800-327-4545) has a lot of literature > > including a quarterly booklet - "Parkinson Report", which contains many > > informative articles. Ask to be put on their mailing list for that. > > I am the facilitator for a Young Parkinson support group so I can offer > > a few suggestions concerning a support group. First I would call both > > of those 800 numbers listed above and they can tell you if there is a > > support group in your area (affiliated with them). Our group splintered > > off of a larger group of all ages and stages. It would be nice if you > > could find a young on-set group, though they tend to be few and far > > between. We have 2 members who drive 1 1/2 to 2 hours to come to our > > monthly meetings. Make up "flyers" and post them where ever you find > > a place. Be sure to put something in your neurologists office. April is > > Parkinson Awareness Month. If your not shy perhaps you could have > > something put in your local newspaper or on the radio/TV. And here is > > something interesting - our mailing list has 26 names on it , but of > > those 26, less then half come with any regularity to the meetings. A few > > of them have never been to a meeting, but they all want their names left > > on the mailing list! > > > > Sharon H