----- Original Message -----
Sent: Sunday, February 25, 2001 4:15
PM
Subject: Re: New Parkinsons Patient
Diane,
I
also started punching in the night, my wife had to move to a different bed for
a while...:-).... It lasted about 6 months and that has
pretty much gone now.
If
you're not shaking badly, why are you taking Sinemet? I've been shaking
for three years and am not taking any such med. yet..... I'm holding off
until it's really needed. It has myriad side effects, some of which get
worse over the years of using it... Sinemet doesn't slow down the disease and,
for many, the useful time for using Sinemet has a
limit.
I'm
hoping that by delaying long enough that my body won't be reacting too badly
to the Sinemet before I can get a stem cell transplant.... Have
you discussed aa strategy like this with your neuro.?
Bill
PWP
New
Jersey
I was diagnosised with Parkinsons Disease just two weeks
ago (49 yr old female) after noticing a change in my walk/gait for the past
year untill i was almost unable to walk and sought treatment. Not many other
synptoms except balance and coordination, I shake or tremble inwardly
but it is not visable. Yet. Here are some questions i
have.
I wake up several times a night with
nightmares, screamming, kicking, punching etc, etc, etc. and have for approx
3 years. The Dr. I saw at the Univ.of Mich said this is part of the
P.D. Do others experiance this? Sinemet seems not to have helped
that maybe made it worse althought my walk has MUCH improved on
sinemet. The Sinemet causes my armpits to be VERY uncomfortable-
hurt! I have never experianced this before-Is that
common?
I would like to find or start a support group in my
Northern Michigan area-any help there?
Thank-you.
DN
