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Sounds good to me and should be feasable under the aegis of PAN. Michel ----- Original Message ----- From: "Gail Vass" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, February 22, 2001 12:03 PM Subject: How about a "back-up" plan... > I've had stranger ideas...but listen to this one... > > Suppose those Nobel Laureates asking Bush not to block U.S. funding for > studies falls on deaf ears > > Suppose President Bush maintains his position for the next 4 years...or > eight years if he's re-elected. > > As the post that Judith said, "Mouse studies point toward cure for > Parkinson's disease. McKay and Isacson said researchers are almost ready > to test the > technique in humans, but social and political issues must be resolved > before that step can be taken in the United States. " > > "At the same time, McKay said it may happen soon in Britain, France or > the Netherlands, as those countries are adopting policies to advance > embryonic stem cell research. " > > If the cure happens in England or France or The Netherlands or > Australia, then that's where we'll have to go or else dilly-dally with > US politics/politicians while times runs out for many. > > Are Parkinson groups looking into assisting their members in going where > people could receive the treatment as soon as it is available...which > could be years before it is available in the US? > > I think the Parkinson Alliance and the NPF and other Parkinson > organizations need to be looking world wide and support the most > promising research where ever it might be and look into setting up > liasons in other countries so that prompt treatment will be available > for ALL Parkies when the cure is found. > > Well I'm actually serious....I think that the NPF should be looking into > a "back up plan"...trying to sign petitions to get this President to > change his mind is fine as long as it's not the only plan .....if this > embryonic stem cell research results in a sucessful treatment and a way > to safely replace needed dopamine producing cells into the brains of > Parkies and cure Parkinsons ...it's needed NOW... > > I've met Margaret Tuchman and Hiliary Blue and Bill Heit ...so many others... > they don't have time for any delays...If a powerful organization like > NPF or PA > went public with a plan to co-ordinate an "Exodus" ship to Europe in an > effort to save our loved ones, I believe it would emphasize the > seriousness and urgency of this "political" discussion....think about > it...If nothing else it should embarrass our leaders into seeing the > issue from another perspective...I've had stranger ideas...I sure would > take my sister > Edna to Europe for a cure for Parkinson's but I'd need a whole lot of > help to make the connections and to get it all arranged...a network > would need to be > in place. What do others think? > > Hugs, Gail