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cross-posted from the Forum Feedback Webforum at MGH: (topic thread initially started by John Lester, wwwebspinner at MGH) ------------------------------------------------------------------- Topic: Re: Other online communities dropping like flies... Author: janet313313 Posted: March 05, 2001 01:36 PM a community can not be made with cash mgh and harvard have provided the venue and the wwwebspinner and i doubt that their intention was to make the webforums a profit center which is the achilles heel of the other online so-called 'communities' i have lived on all sides of the atlantic pond and have been exposed to all forms of national health care systems health care of any kind based on a profit motive strikes me as at least inappropriate and at most an oxymoron, same way as i feel about education based on a profit motive my theory about the energy in the current pd world in north america is that the grassroots democracy of the PARKINSN listserv group (est. nov 8 1993) was a breeding ground for a bunch of us who suddenly realized our own voices not only needed to be heard, but, miraculously, could be heard. the seeds were planted there from which have sprung the parkinson's action forum, the parkinson alliance, the people living with parkinson's org., the maine parkinson society, the renewal of the parkinson foundation/society of canada, the original parkinson web ring, the parkinson unity walk, team parkinson at the los angleles marathon, etc etc. the public ignorance about pd which went hand in hand with the private parkie shame about having pd, have both been dealt a mortal blow through this new means of communication. communication without commercialization money does not make this world go around we are living proof janet IP: Logged http://neuro-mancer.mgh.harvard.edu/ubb/Forum107/HTML/004454-2.html ------------------------------------------------------------------- janet paterson, an akinetic rigid subtype parkie 53 now / 44 dx cd / 43 onset cd / 41 dx pd / 37 onset pd TEL: 613 256 8340 SMAIL: PO Box 171 Almonte Ontario K0A 1A0 Canada EMAIL: [log in to unmask] URL: http://www.geocities.com/janet313/