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hi all

At 23:48 2001/02/28 -0600, Raymond Strand wrote, in part:
>... i would like to interject here--
>if the agonsts are working...
>it would seem that sinemet would work better.
>
>he is already taking dopamine agonists
>substitutes for the real thing (dopamine)
>is this too obvious?  :-) ...

it should be!
i'm concerned about the quality of medical advice here

>i have been diagnosed for a similar time and age,
>and feel progression ...

progression progresses
nothing alive is static

but then again no outcome which we may fear or desire is inevitable
although our fear or desire may contribute to its development

>on another track--
>to the heart of the matter
>what is really bothering you--
>fear
>?
>
>someone once said,
>"we have nothing to fear, but fear itself"...

yup
my 'wisiwig' theory still stands;

if we think the world is frightening
we will see it as frightening and
thus we will feel frightened and
since we feel it, it must be real, no?

>most of us have gone through that time of fear,
>some of us may still live with it each day and can't shake it
>the diagnosis
>the time of progression faster than expected
>losing
>our friends contacts
>our family difficulties
>the thought of lieing in a nursing home
>unable to move
>intellectually still bright
>but trapped
>contemplating our mortality

this sounds like self generated nightmares
based on fearful anticipation rather than here and now reality
we only have today
why sour it with fearful thoughts which may or may not pan out?

yes we are mortal
are we just finding that out now?
this is news?

general and pervasive negative thinking is ...
not to sound like i'm stuck in a rut or anything ...
a prime sign of clinical depression

(in which another prime sign, the paralysis of will,
strikes me as more disabling than pd;
been there done that)

'cd' i.e. clinical depression
is a curable brain chemistry imbalance
known as a mood disorder
as compared to 'pd' parkinson's disease
which is an incurable brain chemistry imbalance
known as a movement disorder

according to dr david burns author of 'feeling good'
(and promoter of 'cognitive therapy'
which is the only non-pharmaceutical therapy
which has been proven effective in reversing cd)
'catastrophising' and 'awfulising' is a mode of thinking
which is one of 10 clearly defined cognitive distortions
which skew reality for anyone afflicted with cd

'pd' can scare us silly
if we allow the nightmares to take over our vision
or
'pd' can hone us into smarter more sensitive more compassionate humans
if we allow the challenges to take over our vision

theoretically, yes, it is our choice,
but 'cd' can strip us of that conscious choice
and numb and anaesthetise our challenges and our joys
into hopelessness and then despair and then seemingly unending pain

>religion and philosophy come to mind
>somehow, you have to face your own inner demons
>there is one life
>that you are ultimately responsible for
>and each day is a gift
>find a  way to
>make the best of it
>or live the nightmare

i am learning that the fear is a fakery
that the nightmare is an illusion
that each day is a gift
whether we allow ourselves to look at it or not
it is still given and is still there
awaiting our recognition

>i wish you the best
>ray
>ps:
>keep going wih this
>answer some of janet's queries
>knowledge and experience
>are abundant on this list
>just reach out

absolutely!

as i said to someone the other day
the dynamic of shared communication
is greater than the sum of our parts
(yikes)
aside from the odd images the metaphor may invoke,
there is nothing better nothing stronger
than that communication dynamic;
it becomes communion

like this


janet

janet paterson, an akinetic rigid subtype parkie
53 now / 44 dx cd / 43 onset cd / 41 dx pd / 37 onset pd
TEL: 613 256 8340 SMAIL: PO Box 171 Almonte Ontario K0A 1A0 Canada
EMAIL: [log in to unmask] URL: http://www.geocities.com/janet313/