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Hi All, A private query on Parkinson's funding inspired the following... On the funding per person in the US (NIH funding only?) I believe $25 is a somewhat dated # these days.... Parkinson's research is grossly under-funded. Per patient Parkinson's expenditures are only $24 (1998) http://www.parkinsonsdisease.com/NEWS/news21.htm For example, the Parkinson's Action Network claims that in 1994 NIH spent more than $1,000 per affected person on AIDS research, $93 on heart disease and $26 on Parkinson's. http://www.cnie.org/nle/st-35.html In FY96, the National Institutes of Health spent $32 per person on Parkinson's disease research compared to $2,143 per AIDs victim http://www.senate.gov/~mccain/parkamd.htm Parkinson's: $ 34 http://www.ai.mit.edu/people/laurel/Bmt-talk/Jun97/msg00199.html Parkinson's affects about as many patients as HIV and AIDS, for example, but the National Institutes of Health last year spent $41 in research dollars per Parkinson's patient, compared with $1,640 per patient with HIV or AIDS. http://seattlep-i.nwsource.com/local/park01.shtml In 1998, the NIH research funding for Parkinson's was $41 million (or $41 per person afflicted) http://www.salon.com/health/feature/1999/11/29/celeb_disease/ NIH support for direct Parkinson's research currently amounts to less than $42 per year per patient http://www.parkinsonsaction.com/letters.html Parkinson's Disease Research received only $43.00 per diagnosed patient http://www.nwpf.org/news/nl/nl990101.html According to a CNN news report, The National Institute of Health projects that it will spend $81.5 million on Parkinson's research in fiscal year 2000, up from a projected $78 million in 1999 and $65.5 million in 1998. "Maybe one of the reasons I'm more optimistic and happier and relaxed than people would expect me to be is I won't see 50 with this. I will see 50, but I will not have this." -- Michael J. Fox Still, "Compared with the amount of federal funding going to other diseases, research funding for Parkinson's lags far behind," Fox claimed. Although the figures are in the millions, they equate to about $50 per diagnosed patient according to the Michael J. Fox Foundation. http://www.accesslife.com/scripts/saisapi.dll/catalog.class/life/20000602-PEO-Fox.html The increases in funding started here... Morris K. Udall Parkinson's Disease Research Act of 1997 http://www.parkinsonsaction.com/research.html Statement of Senator John McCain on Mo Udall's Parkinson's Research Act (S. 535) as Delivered in the Subcommittee on Public Health and Safety http://www.senate.gov/~mccain/motest.htm SENATE RECORD VOTE ANALYSIS 105th Congress 1st Session September 3, 1997, 7:00 pm Page S-1074 Temp. Record Vote No. 214 LABOR-HHS APPROPRIATIONS/Parkinson's Disease Research Increase http://www.senate.gov/~rpc/rva/1051/1051214.htm SENATE RECORD VOTE ANALYSIS 105th Congress 1st Session September 4, 1997, 12:01 pm Page S-8781Temp. Record Vote No. 215 http://www.senate.gov/~rpc/rva/1051/1051215.htm $100 million will be authorized for Parkinson's Disease research, and up to 10 Morris K. Udall Research Centers for Research on Parkinson's Disease will be created (see vote No. 214); those centers will not have limits placed on their use of fetal tissues and organs from elective abortions beyond any limits in existing law (for related debate, see vote No. 215) http://www.senate.gov/~rpc/rva/1051/1051235.htm Scientific Opportunities and Public Needs: Improving Priority Setting and Public Input at the National Institutes of Health (1998) by the Institute of Medicine http://books.nap.edu/books/030906130X/html/index.html Wellstone Calls on NIH to Stop Diverting Needed Funds from Parkinson's Research - June 29th. 1999 http://www.senate.gov/~wellstone/parkinsons.htm Wellstone Urges Increased Funding to Combat Parkinson's Disease http://www.senate.gov/~wellstone/parkinsons2.htm http://www.senate.gov/~wellstone/parkinsons3.htm Testimony of James A. Thomson, V.M.D., Ph.D. http://www.senate.gov/~appropriations/old/labor/thomson2.htm 1999 Parkinson's Disease Research and Treatment Witnesses: Gerald Fischbach, M.D., Director, National Institute of Neurological Disorders, NIH; J. William Langston, M.D., President, The Parkinson's Institute; Michael J. Fox, Actor; Joan I. Samuelson, President, Parkinson's Action Network; Jim Cordy, Pittsburgh, Pennsylvania http://www.senate.gov/~appropriations/old/labor/test.htm Senate Appropriations Subcommittee on Labor, Health and Human Services, and Education Hearing on Parkinson's Research and Treatment September 28, 1999 The Testimony for Joan I. Samuelson, President Parkinson's Action Network http://www.parkinsonsaction.com/press1.html The Testimony of Michael J. Fox http://www.parkinsonsaction.com/press2.html Witnesses appearing before the House Subcommittee on Labor-HHS-Education Appropriations http://www.senate.gov/~appropriations/old/labor/inds2_23.htm 20/20 Aids Gets Too Much Money http://www.actupny.org/alert/2020.html 1999 in Review http://www.samlink.com/~bmartone/january1.htm Statements of Spiegel and Fischbach April 26, 2000 http://www.senate.gov/~appropriations/labor/testimony/fishbach.htm Testimony of Christopher Reeve April 26, 2000 http://www.senate.gov/~appropriations/labor/testimony/reeve.htm Testimony of Lawrence S. B. Goldstein, Ph.D. http://www.senate.gov/~appropriations/labor/testimony/goldst.htm Statement of Gerald D. Fischbach, M.D. Director NINDS - May 18, 2000 http://www.senate.gov/~appropriations/labor/testimony/fishb500.htm Statement of Gerald D. Fischbach, M.D. Director NINDS and Allen M. Spiegel, M. D. Director National Institute of Diabetes & Digestive & Kidney Diseases Before the Senate Appropriations Subcommittee on Labor, Health & Human Services, Education & Related Agencies September 7, 2000 http://www.senate.gov/~appropriations/labor/testimony/fishb96.htm Testimony of Michael J. Fox http://www.senate.gov/~appropriations/labor/testimony/mjfox.htm Testimony of Richard O. Hynes, Ph.D. September 14, 2000 http://www.senate.gov/~appropriations/labor/testimony/hynes.htm Statement of The Honorable Neal Lane Assistant to the President for Science and Technology and Director of the Office of Science and Technology Policy http://www.senate.gov/~appropriations/vahud/testimony/lane.htm Actually, You can search all the testimonies here... Just type parkinson in the box... or stem cell... http://www.hhs.gov/search/testimony.html Continues our commitment to double funding for the National Institute of Health over the next five years by providing $20.3 billion which is $1.5 billion over the President’s request and $2.5 billion more than last year. http://www.house.gov/appropriations/pr01lhco.html Special Supplement Funding A total of $17 million has been set aside in FY2001 for special supplements to enhance research on Parkinson's Disease for existing NINDS grantees, to promote an increase in minority and disabled persons working in neuroscience research, and to support urgent unforeseen needs that might arise. http://www.ninds.nih.gov/funding/ninds_funding_strategy.htm Parkinson's Disease Research Supplements Q&A http://accessible.ninds.nih.gov/funding/pdsupplements.htm Society pays an enormous price for Parkinson's disease. According to the National Parkinson Foundation, each patient spends an average of $2,500 a year for medications. After factoring in office visits, Social Security payments, nursing home expenditures, and lost income, the total cost to the Nation is estimated to exceed $5.6 billion annually. http://www.ninds.nih.gov/health_and_medical/pubs/parkinson_disease_htr.htm APPENDIX (See Table at bottom of pages) PROFESSIONAL JUDGMENT ESTIMATES 71.4 million in 2001 286.7 million in 2005 http://www.ninds.nih.gov/about_ninds/nihparkinsons_agenda.htm Environmental Health Perspectives Volume 108, Number 12 December 2000 http://ehpnet1.niehs.nih.gov/docs/2000/108-12/toc.html Extramurally Speaking... Environmental Health Perspectives Volume 108, Number 12, December 2000 Parkinson Disease Research http://ehpnet1.niehs.nih.gov/docs/2000/108-12/extram-speaking.html NIH Research Funding Allocations Correspond with Some Measures of Disease Burden, Says New England Journal Study June 17, 1999 http://lrp.info.nih.gov/info/info11.htm http://ugsp.info.nih.gov/info_items/info23.htm The Ad Hoc Group for Medical Research Funding A coalition in support of increased funding for the National Institutes of Health. http://www.aamc.org/research/adhocgp/letter.htm Society for Neuroscience SFN Supports Ad Hoc Group For Medical Research Funding FY 2000 Proposal http://www.sfn.org/legislative/policy/med.research.html Biotechnology Industry Organization (BIO) Basic Research Funding http://www.bio.org/laws/new_medicine.html Cheers ...... murray