Kate,
Although I would not totally agree with most of the postings
stating that there is nothing to fear about Sinemet. Sinemet has and
is still the gold standard for symptomatic relief of Parkinson's disease. I
still use Sinemet on a daily basis and receive a great deal of benefit
from it. My benefits are strong because of the surgeries performed on my
brain. Dyskinesias have been all but eliminated.
I have
also had some other problems caused by
excessive long term Sinemet use. I want
to accentuate the excessive, because with moderate doses my problems ceased to
exist. Therefor I would encourage anyone who is having symptom progression to
try Sinemet and also keep an open mind to surgical options out there. They
have been beneficial for me.
Greg
Leeman 40/30/28
Greg,
I was reading something you posted a while ago where you mentioned having
a
2nd pallidotomy this past summer. Would you mind sharing about
your history?
I noticed that you are only 40 and have had this
disease since you were 28.
Did you take Sinemet? My husband
is 48, dx. 3 years ago, and is fearful of
Sinemet. He's been on several
dopamine agonists and Symmetril and Selegaline.
His major problem is
rigidity with muscle spasm and imbalance. I think we're
both afraid that
he might not benefit from Sinemet and if not, there's not
much they can do
at this point, until stem cell replacement someday,
hopefully. We're also
fearful of dyskenesias from Sinemet and I'm just
fearful cuz the disease
seems to really be progressing.
Any input is helpful. Thank you,
Kate