Dear C- Just a brief note-have just come from 3 days at one of our "Indian" casinos here in Connection-a forensic conference combining my favorite things-F.B.I., autopsies, serial murderers,high-profile murder cases taught by people who were there AND slot machines. Have to work tomorrow and am tired, and not so literate. Just my 2 cents worth re: Peter-feel free to ignore it- I personally am a big fan of Clozaril-blood tests are every week for first 6 months, then twice a month. An added bonus, since Peter is losing weight, is that patients usually gain weight on it. My drug of choice should I ever need it-of course, if I need it, I have probably forgotten I agreed to take it- Love and Good Night, TiredGrinch --- Camilla Flintermann <[log in to unmask]> wrote: > So many have written from both lists to share ideas and > give support---is > this a great gang, > or what ??? Thanks to all of you. At the moment we are > OK---though he > refused his Sinemet at 11:30 AM and again at 12:30 > PM(meaning he'd had > none since 9:30AM) and was totally uncooperative, I just > backed off and > left him alone. About 1:15PM he called me and wanted > help getting to bed > to lie down. (this morning he had gotten up ahead of me > and nearly dressed > himself, moving well!) He then took Sinemet without a > murmur ---I couldn't > help pointing out that he was so off because he needed it > ..... > Got him to bed with great difficulty, using walker+gait > belt,and all my > strength. > > After sleeping for more than an hour he got up by > himself, and took meds > 2:30 and 4:30 PM with no problem. Also a small snack of > Ensure and apple. > We'll see about supper..... > > I have decided to eliminate the 1 extra Seroquel, which > the MDS neuro added > recently due to increasing hallucinations. I believe it > may contribute to > the weakness and shakiness, from what I read in the > package insert. (Yes, > Katie--I do check those and call pharmacists !) He has > also been taking > Vioxx for the pain of the vertebral compression fracture > back in early > January, and weakness is one side effect of that. As the > pain is better, I > am cutting down on the Vioxx as well. My usual > assumption, paraphrasing > the slogan of the Clinton campaign, is "It's the meds, > stupid!" (Delda, > Marie, Janet, Barb and others--note taken....) He has > low blood pressure, > but it is well maintained on Florinef, and he has never > seemed to have the > orthostatic hypotension Barbara S. wondered about. > > BTW--Seroquel (the anti-psychotic taken for > hallucinations and confusion) > has seemed to work well for him for more than a year. I > asked his neuro > about Clozaril recently, and he felt Seroquel was > preferable due to the > blood tests required for Clozaril, which he still says > are weekly. > > We're hangin' in, hangin' on, and living one HOUR at a > time right now. > Many of you will know exactly what I mean by that! > Thanks again for all > the caring and concern---I share this partly to relieve > my own feelings, > and partly in the hope it may be helpful to others. > When I get a response > from the neuro, I'll let you know what he says. > > > Camilla Flintermann, CG for Peter 82/70/55 > Oxford, Ohio > <[log in to unmask]> > > on the web at > http://members.tripod.lycos.nl/genugten/flinterm.htm > and also at > http://www.geocities.com/camillahf/index.html > > "Ask me about the CARE list for Caregivers > of Parkinsonians ! " > And visit the CARE webring at > http://www.crosswinds.net/~caregivers/index.html > __________________________________________________ Do You Yahoo!? Yahoo! Auctions - Buy the things you want at great prices. http://auctions.yahoo.com/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn