Monthly cost for just HHA care and meds is approx. 3500. for 5 days week daily care. Medicare, medicaid nor insurance covers all medications. That stated costs does not include the cardiac rehab and excercise monthly cost (110.)that is out of pocket. health insurance premiums State teachers retirement 200.), and on and on. Worry about the money is useless. Too stressful. Don't stress urself out on it. U don't want the govt. to control ur life. points-- Change the NH facility near u. by -- Get involved and volunteer even 3 1 hour time slots a week. --These places need large print books, easy games with large pieces --visits from people --music -- professional movement exercise (liability issue) --memory stimulation --computers with internet access- we had a computer room with no internet access and the seniors weren't using it. I wasn't even using it:) no internet access. Many elders are new to computers. Now the jr. hugh and high school kids are teaching them across the street:) Point ya don't have to spend thousands to do some things Please don't be afraid to visit a facility. The patients there need ur company, conversation, and brain stimulation. Barbara Mallut wrote: > I can't > truthfully say I understand just WHY he was involuntarily removed from his > home to a hospital.. If a patient keeps ending up in the ER, the State doesn't appreiciate it. This applies to anyone , not just one individual. patients will get asked 'why?' I don't make the rules , just listen to them. home and belongings were trashed and/or > abused by> person who was allegedly "helping him"prior to Ivan's being incarcerated This has happened to us. Very common problem. The agency was also closed down also and reopened under the same name! NO MORE will it. Watch people who enter ur home period! > So --- what is the next step with Ivan after he's been in the transferred > over to the next residencial care facility? Will he ever be able to return > to his own home? The hardest question to ask urself is 'Am I safe?' meaning 'where do I get care? ' The state has a monthly rate to care for the ill. When u exceed this amount, u pay for the rest or go where u think u are best taken car of as long as u are able to make that choice. There are many levels of care depending on ur state. One thing people can do for free from their phone at home is to check ur individual city or town to see what the senior age cut off is. It varies from 50 to 60 and some include permantantly disabled of any age. Kidney dialysis, then doc appt., grocery store then hair cuts are the order of importance for the transportation. > This leads me to the question "Are we our brother's keeper? And what good is > all the fund raising efforts on a PERSONAL level if that money doesn't > trickle down assistance L level if the Parkinson's Orgs. if those very same > orgs don't help the INDIVIDUAL person with Parkinson's needinf help (ncluding > general monatery assistance NOW who need personal living assistance. > Maybe we can look at how the Alzheimer org. got their own floor in the facilities and now assisted home clusters when the illness is at the mild stage. Society appear to have learned alot about PD and atypical PD these past years. Now get the NH and local govt. to change their attitudes. The places are built. Change the way they are run in the community. sincerely, Nancy