cross-posted to
the pd webforum
the pd listserv and
the advocacy and activism webforum
hi all
leonard "chy" casavant, the host and founder of
"Travels With Parkinson's - Talk-radio With a Purpose",
posted the following message (edited for clarity) in the ALS webforum at MGH:
http://neuro-mancer.mgh.harvard.edu/ubb/Forum3/HTML/000726.html .
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Author: Chy7 (Leonard Casavant)
Topic: Travels with Parkinson's 27 hour "Parky-thon"
May 4th, 5th and 6th on VoiceAmerica.com
Posted: March 17, 2001 05:29 PM
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We have the signatures, we have the support. now let's raise some money.
My show "Travels with Parkinson's - Talk-radio With a Purpose",
will be sponsoring a three day 27 hour Phone/athon on May 4th, 5th and 6th.
I will broadcast on voiceamerica.com my new Internet talk Radio Station.
We have the signatures flowing and a tide of support.
NOW LETS RAISE SOME MONEY.
I have a major sponsor and more to come.
The Parkinson Alliance will handle pledges and contributions through their
Foundation
and every dollar donated will be matched by them up to $50,000.00.
That's correct: $1.00 for research = $2.00 for research.
We (all forums) worked together on the petition and I know this can be done
for raising research dollars.
I will be holding a three day fund raiser at the Adrian Mall, in Adrian,
Michigan on those dates.
Local sponsors are coming on board, as are Parkinson leaders and PLWP: John
Lester, Peg Willocks, Nancy Abraham, Brenda Tucker, Greg Wasson, Ann
Campbell, Lynda McKenzie, Ryan Trip, Jim Newton, Jimmie Turner, Paula
Wittekind, Joan Snyder, and many others.
I would like feedback from other Forum friends, and will do anything I can
do for our friends at ALS.
I would be honored to help you with your marathon by broadcasting and
advertising across the Internet.
Contact me at [log in to unmask] or by phone (see my web site
http://www.geocities/chycasavant/)
Len ( Chy7 ) Casavant,
Founder and Host "Travels with Parkinson's"
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later, thelma posted a related message in the ALS forum, and i responded,
see the thread below:
http://neuro-mancer.mgh.harvard.edu/ubb/Forum3/HTML/000727.html .
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Author: Thelma
Topic: Who will speak for us
Posted: March 18, 2001 01:19 AM
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Chy is having a marathon and he has invited us to
participate. Who will come forward amd volunteer to put
the information about our petition on the radio network.
This is an opportunity to get the message out that we are
here and we are not orphans and we will be heard.
See his message here and call or write him and you will
find him open and above all sincere and honest.
Can't remember when anyone like Chy cared to give us time
to relate our stories.
What the hey. It is to raise money for Parkinson's
Alliance but it is for research and that is where we
benefit.
I am going to ask John not to forget about us and make a
pitch for ALS as well.
This is it folks now is the time to stand up and be
counted.
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Member: janet313313
Posted March 19, 2001 12:03 PM
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cross-posted to
the pd webforum
the pd listserv and
the advocacy and activism webforum
as chy's unofficial marketing directrix and publicistess
for Travels With Parkinson's,
i can attest to the energizer bunny aspect of the man's
commitment to spreading the word,
whether that word is about parkinson's disease specifically
or about neurological illnesses generally.
all of the neurological research going on now can only
benefit all of us, either directly or indirectly.
the parkinson alliance is the only not-for-profit major
pd org which has been set up and is run by People With
Parkinson's - and is blessed with founders, margaret and
martin tuchman, who do not hesitate in putting their
money where their mouth is, so to speak.
the tuchman foundation will match dollar for dollar, any
sum raised for parkinson's research, up to $50,000.00.
no other research funding program offers that added
benefit.
margaret is a pwp and has recently joined the
hole-in-the-head gang after undergoing DBS surgery and
implant.
she is passionate about the cause.
so is chy.
so am i.
if we can help each other, in any way, in a cross-forum
project, why not?
maybe the petition was only the beginning.
janet
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Travels With Parkinson's - Talk-radio With a Purpose
http://www.geocities.com/chycasavant/ .
The Parkinson Alliance
http://www.parkinsonalliance.net/ .
Voice America
http://www.voiceamerica.com/ .
janet paterson, an akinetic rigid subtype, albeit perky, parky
PD: 54/41/37 CD: 54/44/43 TEL: 613 256 8340 EMAIL: [log in to unmask]
"A New Voice" home page: http://www.geocities.com/janet313/ .
"New Voice News" latest posts: http://groups.yahoo.com/group/nvnNET/ .
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