Eleanor--why not ask one of the online experts about the meds question?
******
Where to ask questions--
1. This website is maintained by the U. of Cincinnati, Case Western Reserve
U., and Ohio State U. Among other things, you can ask questions of
doctors in many specialties. Ask Dr. Arif Dalvi (Peter's neuro) about PD.
Click on the Ask an Expert section, then click on Parkinsons in the list
of diseases. You'll get a
>brief answer in a couple of days.
>http://www.netwellness.org/
**********
2. The Ask Dr Lieberman site .This page of the NPF website is a good
place to get
information, similar to the Ask An Expert page on the NetWellness site I
have recommended. Please make use of it when you are curious, need info to
prepare for a neuro appointment, etc.
http://www.parkinson.org/drindex.htm
It is simple to "join", and you can also read messages without joining.
When you search for a word, you will get a list of mssages, and if you
highlight one and click on "view message" it will appear.
***********
3.
You can add another to this list: The Parkinson's Disease Foundation's
website also has an Ask the Expert section. Most questions are answered
within one business day while others may take up to two or three business
days. The site's address is: http://www.pdf.org.
>In a message dated 3/20/01 10:54:09 PM EST, [log in to unmask] writes:
>
><< I haven't read about the Type B PD >>
>
>I haven't heard anything about Type B PD either, but your letter explains an
>awful lot about my Mom's condition. She's never had any real tremor, but did
>have balance problems and rigidity now more than before. The dementia has
>been there for a couple of years now. No one ever told us about this. Every
>so often I'd start wondering if maybe she'd been misdiagnosed, but that was
>highly unlikely since she has an excellent neuro. She just didn't seem to
>have the same symptoms everyone else writes about.
>Thanks, Kate. Your letter cleared up some concerns. Do you know whether or
>not Type B patients react the same way to the meds--for instance, Comtan,
>Aricept, or Seroquel? Mom's never been able to take any of the agonists or
>the meds to reduce hallucinations. They've always had the opposite effect on
>her. Or is this sort of farfetched?
>
>Eleanor CG Mother 78/72?
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
Camilla Flintermann, CG for Peter 82/70/55
Oxford, Ohio
<[log in to unmask]>
on the web at http://members.tripod.lycos.nl/genugten/flinterm.htm
and also at http://www.geocities.com/camillahf/index.html
"Ask me about the CARE list for Caregivers of Parkinsonians ! "
And visit the CARE webring at
http://www.crosswinds.net/~caregivers/index.html
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In the body of the message put: signoff parkinsn
