Bravo, Janet ! Great response .....
To bad that there is not some kind of tie that could be established that
the Govt. is violating the individuals civil rights by actions of this kind.
They need to be accountable for the STRESS which this is causing and the
fact that stress is not a beneficial factor where PD is concerned to put it
mildly.
Rob
----- Original Message -----
From: janet paterson <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, April 07, 2001 8:20 PM
Subject: Re: SSDI -DENIED
> cross posted
>
> --------------------------------------------------------
> Author: lc_lil
> Topic: SSDI -DENIED
> Posted: April 07, 2001 02:29 PM
> --------------------------------------------------------
>
> Yes logic has taken a backseat. Social security denied
> after 12 years of PD and a state teaching retirement
> that says I am disabled and does NOT permit you to
> work.
>
> Magic words come to mind, and they wonder why we get
> angry.
>
> This too shall pass...
>
> ...more aggravation of course. I know that so
> many people go through this and eventually it should go
> thru. But here we are, trying to help each other
> function as long as possible, to be able to move. But
> it is so deceptive. I read the letter and a chemical
> much more powerful than my meds either turned on or
> off, because if the ss doctor could see me now ... he'd
> see a completely disabled person.
>
> ...they did say that I did
> not qualify according to their criteria, and that even
> if I could not teach, I could do something less
> demanding.
>
> ...I was declared disabled at age 50 last year and
> had worked for well over 20 years, all paying social
> security. I think I will win with an attorney - gee I
> hope so anyway - but the aggravation and time spent
> becomes frustrating. The part that really gets me is
> that I do receive my teacher retirement - it's a
> disability retirement with a clearcut rule that you may
> not work.
>
> ... I truly do think that people are not familiar
> with the condition. That's a good idea to establish
> rapport like that, I didn't feel that with my case
> worker at all. She wasn't cold, just neutral, to the point...
>
>
>
> --------------------------------------------------------
> From: janet313313
> Posted: April 07, 2001 10:06 PM
> --------------------------------------------------------
> lil
>
> this is absolute insanity!
> not to say outrageous!
>
> bureaucracy run amok!
>
> what about the ADA?
>
> why should anyone diagnosed with an incurable
> degenerative disease have to go through any
> re-evaluation and be kicked off the list?
>
> maybe ssdi know something your neuro doesn't know?
>
> maybe they've found the cure and not told anyone?
>
> why should you have to pay legal fees to prove your
> medical condition to anyone?
>
> why should virtually every ssdi applicant in the usa
> with pd have to re-invent the wheel?
>
> where are the pd organisations on this issue? PDF? NPF?
> APDA? MJFF? PLWP? can they not intervene on your
> behalf? where is the medical profession AMA? the
> neurologists ANA ? the movement disorder specialists
> WEMOVE ?
>
> how about separating the medical condition from the
> means test and let the experts in each field do their
> work unimpeded?
>
> adjudication of disability has been removed to a
> separate adjudication body in the ontario disabilities
> support program, meaning the people with the authority
> to evaluate financial need and write checks
> do not have the authority to determine disability.
>
> from my outside viewpoint - "catching cheaters" as a
> premise for operation of the ssdi is an insult to every
> citizen of the usa
>
> maybe y'all need another petition?
>
> just my canadian two cents worth
>
> janet
>
> --------------------------------------------------------
> http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/004073.html .
>
> janet paterson, an akinetic rigid subtype, albeit perky, parky
> PD: 54/41/37 CD: 54/44/43 TEL: 613 256 8340 EMAIL: [log in to unmask]
> "a new voice" home page: http://www.geocities.com/janet313/ .
> "new voice news" latest posts: http://groups.yahoo.com/group/nvnNET/ .
>
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