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Dick, et al.

 I've lived with this steeeeeenkin' disease for 26 years and 58 years old. I
am, like you, the beneficiary of the recent outbreak of public interest in
seeing the end of this crummy disease - and in my opinion, that "end" should
come sooner rather then later!!!

Beginning in June of 1994 I a noticed a twinge of heavy-duty MAJOR pain in my
(dominant)) left shoulder periodically that made itself known several times
throughout the day and night, EVERY day and night.

Because I didn't want to be thought of as a habitual complainer, I never
mentioned the developing  to my nearest 'n dearest, thinking that I had
already dumped my having Parkinson's on 'em (REAL stupid act on my part - and
I don't make a very good martyr or saint! <rueful grin>

Eventually the pain increased till it was no longer like a thin streak of
burning hot lightning making a pathway from shoulder to arm to hand.  This
was definitely NOT something I was going to be able to stoically fit
comfortably into my life!!

I went to an orthopedic specialist who informed me I had a torn rotator cuff
resulting in "frozen shoulder.  I received a cortisone injection directly
into the shoulder joint and had physical therapy, finding both to bring me
relief which unfortunately lasted only about 6 weeks

At that point I was the recipient of Medicare (total-care medical plan - an
HMO.) benefits so switched to "Kaiser Permenente" <my Medicare provider and
the oldest HMO in the USA..  This move gave me a much larger pool of
physicians to chose from,

As I learned how to (work the system,")  and came to know the some of the
individual physicians, I found on orthopedist who was a font on knowledge
when it came to sharing information with the patients and so I learned that
approximately FIFTY PER CENT of all Parkies end up with frozen shoulder due
to a torn rotator cuff after they're diagnosed.  Some folks end up opting for
surgery which offers them a long and not always successful recovery.  Others
rely on getting a cortisone injection every 4 or 5 months and kinda hang
there in a state of medically supervised limbo, i.e., they try to live with
the pain long after the cortisone has stopped working,  Then they get yet
another injection into the shoulder joint. pain goes away, then returns, then
is gone, ad infinitum.

Finally, there's a more then 50-50 chance that the problem will just plain go
away for no apparent reason.  And THAT, after many years of living with the
seemingly endless pain, is what happened to me!.  Weird, 'cause I had already
scheduled the surgery, which ultimately I never had, 'cause the pain had just
up and disappeared.

Barb Mallut

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