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I can't say that Sinemet is the solution for frozen shoulder. My frozen shoulder started after about three weeks of use of Sinemet. I have had no previous injury to the shoulder. The effective shoulder is the opposite of the PD side. I believe the frozen shoulder is due to either PD or Sinemet. [log in to unmask] ----- Original Message ----- From: "janet paterson" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, April 17, 2001 9:10 PM Subject: pd and shoulders redux > >>> Posting number 056006 > Date: Wed, 3 Feb 1999 09:45:17 -0500 > From: janet paterson <[log in to unmask]> > Subject: Re: new member / reply to david thurston > > hi david > > you wrote: > > >Hello list members, > >I was diagnosed with PD less than a month ago. I have a shuffle in my > >gait on the left side and some loss of dexterity in left hand with a > >very very slight tremor. I can live with these symptoms with minor > >adjustment to the way I live. The main symptomatic problem, for which I > >had sought medical attention in the first place, is a painful "frozen > >shoulder" with severly restricted range of movement of my left arm. I am > >told that this is a separate issue from PD, but that the latter's > >tendency to tighten muscles of neck and shoulder could be causing lack > >of response to physical therapy for the shoulder joint. Therefore > >starting PD medication, why not yet strictly necessary, could benefit > >this condition. > > what kind of medico made your diagnosis - a movement disorder specialist? > i disagree with the idea that 'frozen shoulder' is separate from pd > i believe that it is a symptom of the muscle rigidity of pd > [i relate it to a permanent cramp] > and also believe that levodopa would ease it > been there done that > > >I have not started medication yet because of another worry: In order to > >get a balanced understanding on what was happening, I sought a second > >opinion from another neurologist. Result: complete confusion. One > >recommends that I commence with dopamine agonist Pergolide, the other > >(who knows about the other's recommendation) favours levodopa in the > >form of Madopar. Both tell me it is my decision. These are two reputable > >medical men, when the time comes that I feel I am ready for the > >commitment, which course do I choose? Not so much that, how, as a > >layman, do I choose? > >Dave Thurston > > go back to both, tell them of both opinions > and ask them to explain their reasoning to you > ask them how much experience [how many patients/at what stages] > they've had with pd > > you can be a layman no longer > you have to become your own best advocate > this kind of disagreement and ignorance about pd will not stop here > pd ignorance among medicos can be fatal as we have seen on this list > > the best kind of pd info in the world is here in our archives at: > <http://james.parkinsons.org.uk/> > as maintained by simon coles > > > janet > > > >>> Posting number 056013 > Date: Wed, 3 Feb 1999 10:48:16 -0500 > From: janet paterson <[log in to unmask]> > Subject: Re: new member / frozen shoulder > > hi all > > jeannette wrote, in part: > > >...I, too, had a frozen and painful left shoulder and after > >unsuccessful cortizone shots by MD was referred to a neuro who > >after a process of elimination diagnosed possible PD and SINEMETCR > >therapy began and I returned to exercising and my shldr improved. > >Was the improvement from exercise or SINEMETCR or both? I don't > >know. Probably some of both.... > > i would venture a guess that it was the dopamine in the sinemet > > if i am dopamine dis-advantaged > a repetitive movement like typing will become slower and slower > as the muscles involved get tighter and tighter > [which is what i relate to a muscle cramp] > > i can't imagine trying to exercise an already cramped muscle > but i could be wrong here > > in my case this tightness can only be relieved by meds: > when dopamine-enhanced, > i find that my tight muscles 'melt' and 'loosen' back to normal > > > janet > > > >>> Posting number 092447 > Date: Fri, 16 Feb 2001 12:23:31 -0500 > From: janet paterson <[log in to unmask]> > Subject: Re shoulder pain / Doctor David Grimes times two > > hi all > > At 13:23 2001/02/16 -0330, Anne Rutherford wrote: > >Many years ago when I was seeing one of the doctors at the > >movement disorder clinic in Toronto he mentioned a small > >study they had just finished They had asked clinic patients > >about shoulder problems such as pain and stiffness in the > >years before PD was diagnosed. They were very surprised at > >the number of PWP who had such problems. > >Since then I have asked many PWP if they had needed treatment > >for shoulder pain and a surprising number said yes. > >>I don't know if any such research has been written up in a > >medical journal. Perhaps one of the great hunters could do a > >search. Anne Rutherford > > > this is one of the best descriptions i have found: > > ------------------------------------------------- > > Shoulder joint pain is a frequent problem in Parkinson's. > > Commonly called "frozen shoulder", it includes pain, a limited range of > motion, and stiffness. > > It occurs becasue of decreased arm swing and shoulder movement. > > Frozen shoulder has been noted before the appearance of the main symptoms > of Parkinson's and it affects the body side first affected. > > It is seen more in patients with slowness and stiffness rather than tremor, > and has been noted to clear after thalamotomy. > > Initiation of anti-parkinsonian therapies (meds) will often improve this > problem. > > Also, range of motion exercises, and moving the shoulder with heat (warm > shower), will help significantly. > > Anti-inflammatory drugs such as aspirin or ibuprofen will help. > > If shoulder pain becomes severe and persisitent, a referral to > physiotherapy or a rheumatologist is recommended. > > Biceps dendonitis may also cause shoulder pain and may result from the > forward shoulder posture that some parkinsonians develop. The patient has > tenderness of the biceps tendon over the front of the shoulder. > > The clavicle and shoulder are often injured in falls and very unpleasant > chronic shoulder region pain results. This is another good reason to avoid > falls. > > ------------------------------------------------- > excerpted from page 161 of: > "Parkinson's - One Step at a Time" > by > J.David Grimes MD FRCPC > and > David A.Grimes MD FRCPC > [IBSN 0-9694243-1-0] > First Edition Published 1966 > Third Edition Published 1999 > by > The Parkinson's Society of Ottawa-Carleton > 1053 Carling Avenue > Ottawa, Ontario K1Y 4E9 > Canada > ------------------------------------------------- > > > anyone can retrieve any message from the PARKINSN list archives as easy as: > 1. send the following e-mail message (where xxxxxx = the post numbers): > GETPOST PARKINSN xxxxxx xxxxxx xxxxxx > 2. to the PARKINSN listserver at: > [log in to unmask] > 3. and, bob's yer uncle, the listserver will e-mail them to you in minutes! > > janet paterson ~ [log in to unmask] ~ http://www.geocities.com/janet313/ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn